Our work plan
Thanks to funding from CIHR and MDC, NMD4C has launched a three-year work plan to achieve its mission of improving care and treatment of NMDs for all Canadians. The work plan is split into “work packages” with defined goals and outputs.
Work Package 1: Network coordination, national and international networking
Work Package 2: Training, education and capacity building
Work Package 3: Knowledge translation and dissemination
Work Package 4: Research resources
The infographic below shows how the network’s activities will help achieve better outcomes for NMD research and care.
Relevant publications
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Clinical trial coordination resources
Leads: Craig Campbell, Jim Dowling Currently, NMD trial sites are approached by sponsors (pharmaceutical companies and their contract research organizations) individually, in an uncoordinated fashion....
Patient registries
Leads: Craig Campbell, Lawrence Korngut Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and...
Clinical guidelines
Development, dissemination, and implementation of clinical guidelines (Leads: Cynthia Gagnon, Kathryn Selby, Maryam Oskoui, Reshma Amin, Homira Osman) Canadian neuromuscular clinicians and scientists have contributed...
