The Neuromuscular Disease Network for Canada


Our work plan

Thanks to funding from CIHR and MDC, NMD4C has launched a three-year work plan to achieve its mission of improving care and treatment of NMDs for all Canadians. The work plan is split into “work packages” with defined goals and outputs.

Work Package 1: Network coordination, national and international networking

Work Package 2: Training, education and capacity building

Work Package 3: Knowledge translation and dissemination

Work Package 4: Research resources


The infographic below shows how the network’s activities will help achieve better outcomes for NMD research and care.


Relevant publications

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Patient registries

Leads: Craig Campbell, Lawrence Korngut Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and...

Network development

Bringing people together to achieve joint goals and share expertise is a crucial foundation for better research and care across Canada. NMD4C is a sustainable...
Researcher wearing gloves arranging blood sample tubes in a rack


Leads: Bernard Brais, Rashmi Kothary Biobanks are organized collections of biomaterial samples available for research. In rare diseases like neuromuscular disease, the number of available...

Clinical guidelines

Development, dissemination, and implementation of clinical guidelines (Leads: Cynthia Gagnon, Kathryn Selby, Maryam Oskoui, Reshma Amin, MDC) Canadian neuromuscular clinicians and scientists have contributed to...
Clinical trial

Clinical trial coordination resources

Leads: Craig Campbell, Jim Dowling Currently, NMD trial sites are approached by sponsors (pharmaceutical companies and their contract research organizations) individually, in an uncoordinated fashion....