The Neuromuscular Disease Network for Canada

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January 2021 newsletter

The January 2021 issue of the NMD4C newsletter is now available!

Topics include NMD4C’s plans for the year, an annual update from Jesse’s Journey, , new research from NMD4C participants, and a member spotlight on NMD4C investigator Dr. Cynthia Gagnon.

View the January 2021 newsletter here.

Sign up for future issues of the NMD4C newsletter here.

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Read next...

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Dr. Hanns Lochmüller Presenting at Can-GARD / CCMG The Leading Strand Webinar Series

The Leading Strand webinar series is designed for genetics health professionals, led by the Canadian College of Medical Genetics and co-sponsored by Can-GARD. Speakers will be translation-focused researchers, clinicians and innovators. The series will help attendees anticipate, access, and apply new approaches and technologies for patient care.

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Research Highlight: Study on COVID‑19 in Children With Neuromuscular Disorders

The NMD4C would like to highlight a paper from the Neuromuscular Working Group of the Spanish Pediatric Neurology Society, who have recently published a study which aims to describe the clinical characteristics and outcome of COVID-19 in the pediatric NMD patient population.

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The BRAIN Conference | Two-day online conference

BRAIN and its Guarantors are excited to announce a new venture: The BRAIN Conference! This two-day conference will feature a selection of fantastic speakers, invited by our conference Chairs from around the globe.

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NMD4C Year in Review

The NMD4C is proud to be where we are today. It is no easy task to unite a diverse community of stakeholders under a clear and united vision; even more difficult is to do so with the unique challenges every single member of our community faced during 2020.

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MDC Annual Neuromuscular ‘Seed Grant’ Competition Launch

MDC is very excited to announce that our Annual Neuromuscular ‘Seed Grant’ Competition has launched and are now accepting applications until Feb 2, 2021 for Translational Science Seed Grants and Clinical Health Management Grants.

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Dr. Bernard Brais Featured in The Economist Report on Navigating Rare Neurological Diseases

NMD4C Investigator Dr. Bernard Brais is featured as a Canadian expert in The Economist Business Intelligence Unit’s recent report Navigating Rare Neurological Diseases: Meeting the Challenge for Policy Makers, Patients and Healthcare Professionals.