The Neuromuscular Disease Network for Canada

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May 2020 newsletter

We were excited to release the first issue of the NMD4C newsletter today! Topics include information about the Canadian Neuromuscular Disease Registry (CNDR), announcements for two upcoming survey studies for people with neuromuscular diseases and their caregivers, and a member spotlight on our principal investigator Dr. Hanns Lochmüller.

View the May 2020 newsletter here.

Sign up for future issues of the NMD4C newsletter here.

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July 2020 newsletter

Topics include a new national biobank/biorepository virtual catalogue, NMD4C and Muscular Dystrophy Canada (MDC)’s webinar series, exciting new grants from Jesse’s Journey, MDC’s COVID-19 response, new research from NMD4C participants, and a member spotlight on steering committee member Dr. Jodi Warman Chardon.

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Upcoming webinar: The Genetics of Congenital Myopathies in French Canadians

NMD4C and MDC are pleased to invite you to a basic science webinar on July 7, 2020 about the genetics of congenital myopathies in French Canadians.

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Exciting research grants awarded by Jesse’s Journey

One of NMD4C’s partners, Jesse’s Journey, recently announced their research grant recipients for 2020. NMD4C is very excited that two of our investigators were awarded funding!

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New research highlight: Ottawa

This week, NMD4C would like to highlight some of the fantastic recent neuromuscular work by our Ottawa colleagues.

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June 2020 newsletter

1) New NMD4C monthly webinar series 2) Update on upcoming conferences 3) Two research participation opportunities 4) New research from NMD4C participants 5) Member spotlight on steering committee member Dr. James Dowling.

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MDC’s burden of illness study

If you have a neuromuscular disorder or care for someone who does, we need your help! You are invited to participate in a questionnaire on the costs of living with a neuromuscular disorder and the impact of neuromuscular disorders on everyday life.