The Neuromuscular Disease Network for Canada


Joshua Lounsberry


National Director of Operations of the Canadian Neuromuscular Disease Registry

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As National Director of Operations Josh Lounsberry oversees all aspects of the Canadian Neuromuscular Disease Registry including business operations, research planning, and strategic partnerships. He has over a decade managing teams in medical research, is a published researcher, and has an MBA.

Recent publications

Hodgkinson, VL, Oskoui, M, Lounsberry, J, M'Dahoma, S, Butler, E, Campbell, C et al.. A National Spinal Muscular Atrophy Registry for Real-World Evidence. Can J Neurol Sci. 2020.47 (6)810-815 PMID:32493524

Carlson, LE, Lounsberry, JJ, Maciejewski, O, Wright, K, Collacutt, V, Taenzer, P et al.. Telehealth-delivered group smoking cessation for rural and urban participants: feasibility and cessation rates. Addict Behav. 2012.37 (1)108-14 PMID:21968227

Garland, SN, Lounsberry, J, Pelletier, G, Bathe, OF. "How do you live without a stomach?": a multiple case study examination of total gastrectomy for palliation or prophylaxis. Palliat Support Care. 2011.9 (3)305-13 PMID:21838951

Lounsberry, JJ, Macrae, H, Angen, M, Hoeber, M, Carlson, LE. Feasibility study of a telehealth delivered, psychoeducational support group for allogeneic hematopoietic stem cell transplant patients. Psychooncology. 2010.19 (7)777-81 PMID:19653332

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