The Neuromuscular Disease Network for Canada

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NMD4C Knowledge Translation (KT) Webinar Series

Did you know? In September, the network’s Knowledge Translation team launched a  webinar series to provide a variety of information, tools and general guidelines to facilitate evidence-based practice.

If you missed the first KT webinar on September 29, it’s not too late! If you wish to watch (or re-watch) Dr. Lamontagne’s presentation ‘’Setting up the basics for a successful KT plan’’,  you can learn about the knowledge-to-action framework, including the differences between the end of grant and integrated KT plans, specific challenges with KT in the context of neuromuscular disease, and how to develop a KT plan for a CIHR- grant. You can still access a recording here.

 

Share your knowledge translation experience with us!

Did you recently apply KT skills in your clinical practice? Are you aware of any KT projects around you that you believe could benefit other colleagues? If you have an example of a successful (or constructive!) KT story, the NMD4C KT team would love to hear from you. We hope that sharing these experiences within the network can inspire other members of the neuromuscular community to explore the different KT options they have available to them, and to implement these strategies in their work.

If you would like to share a KT project with the network, please contact network communications coordinator James Davis at .

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Dr. Hanns Lochmüller Recipient of the Dr. George Karpati Award for Researcher of the Year

The NMD4C are excited to share that the network’s lead investigator Dr. Hanns Lochmüller is the recipient of Muscular Dystrophy Canada’s Dr. George Karpati Award for Researcher of the Year! This prestigious award is presented annually to an exemplary neuromuscular clinician or researcher who has made a significant contribution to neuromuscular research, or the advancement of care of people with neuromuscular disorders. 

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Final Session of the Defeat Duchenne Canadian Conference Wrap-Up and Thank You

Thank you to everyone able to join us for the 2021 Defeat Duchenne Conference Series addressing Duchenne Muscular Dystrophy Standards of Care in Canada. Jesse’s Journey in partnership with NMD4C and MDC are so appreciative of all our speakers and conference chairs who dedicated their time and energy in developing the programs. We successfully generated insightful conversations and discussions on how we might address care gaps in Canada. We are now working towards publishing the proceedings from this conference series to help shape the future of care for your patients and our families living with Duchenne in Canada.

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Share Your Events with the NMD4C

The NMD4C strives to provide opportunities for our members for continuing neuromuscular training, development of knowledge and skills, and collaborate with other neuromuscular stakeholders; If you or your organization are hosting a neuromuscular event, conference or webinar, we would like to help you share it with our neuromuscular members!

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2021 NMD4C Year in Review

The NMD4C wrapped up its 2nd Annual Investigator meeting on Monday, November 29th 2021. This virtual conference served as an opportunity for the network’s investigators to come together and discuss the progress made towards the network’s goals over the past 12 months, with the leaders of the seven working groups presenting the results of their work. With the calendar year wrapping up, it is the perfect opportunity to reflect on all the inspiring progress the NMD4C has made over the past year in pursuit of the network’s goals.

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Session Three of Defeat Duchenne Canadian Conference Addressing Standards of Care in Canada to Take Place December 3rd and 4th

The NMD4C is proud to partner with Jesse’s Journey and Muscular Dystrophy Canada (MDC) in hosting the first national summit solely focused on DMD for health care providers across Canada, with the theme for this year’s event being ‘Addressing DMD Standards of Care in Canada.’ Don’t forget to register for the third and final session of the CPD-accredited Defeat Duchenne Canadian Conference, which will take place on the 3rd and 4th of December, 2021.

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November 29th Networking Event for all NMD4C Members

The NMD4C are excited to extend an invitation to our members to join us at a Networking Event on November 29th at 2:10pm. This event is open to all NMD4C members and is an opportunity to meet and network with fellow colleagues, early-career clinicians and researchers, NMD4C investigators and working group members, and to discuss all things neuromuscular!