Letter to provincial governments regarding SMA therapy outcome measures

NMD4C steering committee member awarded Tier 2 Clinical Research Chair

A national spinal muscular atrophy registry for real world evidence

July 2020 newsletter

Upcoming webinar: The genetics of congenital myopathies in French Canadians

Exciting research grants awarded by Jesse’s Journey

New research highlight: Ottawa

June 2020 newsletter

MDC’s burden of illness study