Meet the NMD4C Team
Steering Committee
The Steering Committee provides overall scientific leadership, direction, and oversight. Its members are responsible for overseeing progress and coordination between the different work strands, operations, administration, budget, and interaction with knowledge users. They are accountable for the delivery of the scientific milestones and the effective administration of the project.
Hanns Lochmüller
Senior Scientist, CHEO Research Institute
| Professor of Neurology, University of Ottawa Faculty of Medicine and The Ottawa Hospital Department of Medicine
James Dowling
Professor, Pediatrics and Molecular Genetics, University of Toronto
| Pediatric Neurologist, Senior Scientist, Program of Genetics and Genome Biology, The Hospital for Sick Children
Lawrence Korngut
Neuromuscular Neurologist, Associate Professor, Department of Clinical Neurosciences, Hotchkiss Brain Institute, University of Calgary
Jodi Warman Chardon
Clinician-Scientist, Director of the Ottawa Neuromuscular Centre, The Ottawa Hospital; Associate Scientist, OHRI; Scientist, CHEORI
| Associate Professor of Neurology, Co-Director of the Centre for Neuromuscular Disease, University of Ottawa
Cynthia Gagnon
Professor, Rehabilitation, Université de Sherbrooke; Researcher, FRQS Centre de recherche du CRCHUS
| Visiting Professor, uOttawa and CHEO-RI
Homira Osman
VP of Research & Public Policy at Muscular Dystrophy Canada
Natasha Chang
Assistant Professor, Department of Biochemistry, McGill University
Investigators
Aaron Izenberg
Neurologist, Director of Rapid Neurology Clinic and Neurology Education, Sunnybrook Health Sciences Centre; Assistant professor, Department of Medicine, Division of Neurology, and Neurology Education Committee member, University of Toronto
Agessandro Abrahao
Assistant Professor of Medicine (Neurology) at University of Toronto | Staff Neurologist at Sunnybrook Health Sciences Centre
| Associate Scientist at Sunnybrook Health Sciences Centre
Alberto Aleman
Neurologist, Children's Hospital of Eastern Ontario
Alexandra King
Internal Medicine Specialist at Saskatchewan Health Authority | Adjunct Professor, Health Sciences at Simon Fraser University.
| Nipissing First Nations woman | Cameco Chair in Indigenous Health and Wellness at the University of Saskatchewan
Aymeric Ravel-Chapuis
Assistant Professor in the School of Pharmaceutical Sciences at the University of Ottawa
Benoit Gentil
Assistant Professor of Kinesiology and Physical Education at McGill University
| Associate Member of Neurology and Neurosurgery at McGill University
Bernard Brais
Professor, Neurology and Human Genetics, McGill University
| Neurologist and Director of the Rare Neurological Diseases Group, Montreal Neurological Institute and Hospital
Bernard Jasmin
Dean and Professor at faculty of Medicine UOttawa |
| Vice-President, Research, at the Association of Faculties of Medicine of Canada (AFMC)
Cam-Tu Émilie Nguyen
Pediatric Neurologist, CHU Sainte-Justine, Université de Montréal
| Medical Director of the Neuromuscular clinic, Marie Enfant Rehabilitation Centre of CHU Sainte-Justine | Neuromuscular and EMG fellowship director at CHU Sainte-Justine
Christen Shoesmith
Associate Professor, Neurology, Western University; Neuromuscular Neurologist, Director of Neuromuscular Fellowships and Motor Neuron Diseases Clinic, London Health Sciences Centre
| Medical Director, Motor Neuron Diseases Clinic, University Hospital in London
Christopher Perry
Associate Professor in the School of Kinesiology and Health Sciences at York University in Toronto, ON, Canada
| Associate Director of the Muscle Health Research Centre at York University in Toronto, ON, Canada
Colleen O’Connell
Professor of Physical Medicine and Rehabilitation at Dalhousie University
| Physiatrist, Medical Director and Research Chief at Horizon’s Stan Cassidy Centre for Rehabilitation
Craig Campbell
Head of Pediatric Neurology, Chair of Pediatrics, Medical Director - Neuromuscular Clinic, Thames Valley Children’s Centre, - Pediatric Neurophysiology Laboratory, Children’s Hospital London Health Sciences Centre
| Professor of Pediatrics, Epidemiology and Clinical Neurological Sciences, Western University; Scientist, Children’s Health Research Institute
Daria Trojan
Associate Professor of Neurology and Neurosurgery at McGill University | Professeure associee in the Department of Medicine at the Université de Montréal
| Physiatrist at the Montreal Neurological Hospital, Jewish Rehabilitation Hospital, and Constance-Lethbridge Rehabilitation Centre
Élise Duchesne
Associate Professor, Department of Health Sciences, Université du Québec à Chicoutimi
| Researcher, Groupe de recherche interdisciplinaire sur les maladies neuromusculaires (GRIMN)
Gerald Pfeffer
Associate Professor, Clinical Neurosciences, Medical Genetics, and Neurologist, University of Calgary
| Full Member of the Hotchkiss Brain Institute
Hernan Gonorazky
Assistant Professor, Pediatrics, University of Toronto
| Pediatric Neurologist, Director of Neuromuscular Fellowship Program, The Hospital for Sick Children
Hugh McMillan
Professor, Pediatric Neurology, University of Ottawa
| Pediatric Neurologist and Neuromuscular specialist at the Children’s Hospital of Eastern Ontario
Jason Karamchandani
Associate Professor, Department of Pathology, McGill University
| Clinical Neuropathologist, Scientific Director of C-BIG Repository, The Montreal Neurological Institute and Hospital, McGill University Health Centre Research Institute
Jean Mah
Pediatrics and Clinical Neurosciences Professor at the Cumming School of Medicine
| Pediatric Neurologist and the Director of the Pediatric Neuromuscular Program at the Alberta Children’s Hospital
Jocelyn Zwicker
Neuromuscular Neurologist at The Ottawa Hospital Neuromuscular Centre
| President of the The Ottawa Hospital Medical Staff Association
Kathryn Selby
Clinical Assistant Professor, Pediatrics, University of British Columbia; Pediatric Neurologist, BC Children’s Hospital
| Medical Director, Pediatric Neuromuscular Program of BC and the Yukon; Investigator, BC Children’s Hospital Research Institute
Kednapa Thavorn
Associate Professor of Epidemiology and Public Health at uOttawa | Senior Scientist and Scientific Lead of Health Economics at the Ottawa Hospital Research Institute
| Adjunct Scientist at ICES
Kerri Schellenberg
Neuromuscular Neurologist at University of Saskatchewan | Associate Professor at University of Saskatchewan
| Medical Director of the ALS/MND clinic and the Royal University Hospital EMG lab | co-chair of the Canadian ALS research network
Kristina Joyal
Assistant Professor of Pediatrics and Child Health at University of Manitoba | Neuromuscular Pediatric Neurologist for the Neuromuscular Clinic at the Rehabilitation Center for Children
| Pediatric Neurologist at the Winnipeg Clinic and HSC Winnipeg Children's Hospital | Researcher with the Children's Hospital Research Institute of Manitoba
Leanne Ward
Professor of Pediatrics and Tier 1 Clinical Research Chair in Pediatric Bone Disorders at uOttawa | Medical Director of the CHEO Genetic and Metabolic Bone Disease Clinic
| Scientific Director of the Ottawa Pediatric Bone Health Research Group | Pediatric Endocrinologist at CHEO
Martine Tetreault
Assistant Professor, Department of Neuroscience at Université de Montreal
| Researcher, CRCHUM
Maryam Oskoui
Pediatric Neurologist, Neurophysiologist and Epidemiologist, Clinician Scientist and Director of Pediatric Neurology, Montreal Children’s Hospital
| Associate Professor, Departments of Pediatrics and Neurology and Neurosurgery, McGill University | Scientist, Research Institute of the McGill University Health Centre
Michael Rudnicki
Professor of Medicine and Cellular and Molecular Medicine, and Program Director of Regenerative Medicine at uOttawa | Scientific Director of the Canadian Stem Cell Network
| Senior Scientist and Director of the Regenerative Medicine Program and the Sprott Centre for Stem Cell Research at Ottawa Hospital Research Institute
Nicolas Dumont
Associate professor, Rehabilitation department, University of Montreal
| Principal Investigator, Musculoskeletal health research axis, Sainte-Justine Hospital research center
Patrick Frosk
Associate Professor, Pediatrics and Child Health, Biochemistry, and Medical Genetics, Director of Medical Genetics and Genomic Residency Program, University of Manitoba
| Clinical Geneticist, Investigator, Children's Hospital Research Institute of Manitoba
Penney Gilbert
Associate Professor, University of Toronto | Canada Research Chair in Endogenous Repair Institute of Biomedical Engineering
| Primary Appointment Donnelly Centre, Cross-Appointed | Department of Cell and Systems Biology, Cross-Appointed
Rami Massie
Associate Professor of Neurology at McGill University
| Neurologist at the Montreal Neurological Institute and Montreal General Hospital Neuropathy Clinic
Rashmi Kothary
Deputy Scientific Director and Senior Scientist, Ottawa Hospital Research Institute
| Professor, University of Ottawa
Reshma Amin
Director of Sleep Medicine and Long-term Ventilation, Respirologist and Sleep Physician, The Hospital for Sick Children | Professor, Department of Pediatrics, University of Toronto
| Clinician Investigator, Senior Associate Scientist, Child Health and Evaluative Sciences, SickKids Research Institute
Stephanie Plamondon
Clinical Professor of Clinical Neurosciences at University of Calgary | Physiatrist at South Health Campus Neuromuscular Multidisciplinary Outpatient Clinic team
| member of Hotchkiss Brain Institute and Mathison Centre for Mental Health Research and Education
Toshifumi Yokota
Professor of Medical Genetics and The Friends of Garrett Cumming Research & Muscular Dystrophy Canada Endowed Research Chair at the University of Alberta Faculty of Medicine and Dentistry
Vera Bril
Professor of Neurology at University of Toronto | Neurologist and Director of the Neuromuscular Section at University Health Network and the University of Toronto
| Senior Scientist at the Toronto General Research Institute
Victoria Hodgkinson
Executive Director, Canadian Neuromuscular Disease Registry
Xavier Rodrigue
Associate Clinical Professor, Rehabilitation, Université Laval
| Chief Physiatrist, CIUSSSCN
Network Staff
Erin Beattie
Network Manager
James Davis
Communications and Administrative Coordinator
Kevin LaFleur
Biobank Developer
Patient Partners
Knowledge Users
Stacey Lintern
Chief Executive Officer, Muscular Dystrophy Canada
Daria Wojtal
Director of Research at Muscular Dystrophy Canada
Nicola Worsfold
National Vice President Research, Education & Advocacy, Defeat Duchenne Canada
Marie-Hélène Bolduc
VP of Programs and Services, Muscular Dystrophy Canada
| MBA