Victoria Hodgkinson

Investigator
National Program Manager at the Canadian Neuromuscular Disease Registry
NMD4C Working Group(s): Patient Registries
Email VictoriaBiography
Recent Publications
Walter, MC, Laforêt, P, van der Pol, WL, Pegoraro, E, 254th ENMC Workshop Study Group. 254th ENMC international workshop. Formation of a European network to initiate a European data collection, along with development and sharing of treatment guidelines for adult SMA patients. Virtual meeting 28 - 30 January 2022. Neuromuscul Disord. 2023.33 (6)511-522 PMID:37245491
Jewett, G, Khayambashi, S, Frost, GS, Beland, B, Lee, A, Hodgkinson, V et al.. Diagnostic criteria in amyotrophic lateral sclerosis: Time for a change. Muscle Nerve. 2022.66 (6)E34-E35 PMID:36116127
Jewett, G, Khayambashi, S, Frost, GS, Beland, B, Lee, A, Hodgkinson, V et al.. Gold Coast criteria expand clinical trial eligibility in amyotrophic lateral sclerosis. Muscle Nerve. 2022.66 (4)397-403 PMID:35673968
Slayter, J, Hodgkinson, V, Lounsberry, J, Brais, B, Chapman, K, Genge, A et al.. A Canadian Adult Spinal Muscular Atrophy Outcome Measures Toolkit: Results of a National Consensus using a Modified Delphi Method. J Neuromuscul Dis. 2021.8 (4)579-588 PMID:33867362
Hodgkinson, V, Lounsberry, J, M'Dahoma, S, Russell, A, Jewett, G, Benstead, T et al.. The Canadian Neuromuscular Disease Registry 2010-2019: A Decade of Facilitating Clinical Research Througha Nationwide, Pan-NeuromuscularDisease Registry. J Neuromuscul Dis. 2021.8 (1)53-61 PMID:32925088
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