Victoria Hodgkinson



Executive Director, Canadian Neuromuscular Disease Registry

NMD4C Involvement: Pillar 2: Clinical Research, Pillar 3: Clinical Practice Research, Theme 5: Open Science

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Dr. Hodgkinson is the Executive Director of the Canadian Neuromuscular Disease Registry, where she oversees the scientific management and coordination of national patient registries in neuromuscular disease. Her work involves management of the registry network, development and review of registry datasets, and research project design and scientific analyses. She is actively engaged in global collaborative projects to share data for common purposes, improve registry design and utility worldwide, and also acts as co-chair of the global TREAT-NMD SMA Registries group. Through this work she is involved in consensus building within Canada and globally. Before joining the CNDR, Victoria worked in business development with Innovate Calgary and the University of Calgary helping facilitate research partnerships between not-for-profits, industry, and academics.
Dr. Hodgkinson received her BA in Biology from Cornell University (NY, USA), and her Ph.D. in Biochemistry from the University of Missouri (MO, USA), where her work work focused on copper homeostasis in the central and peripheral nervous systems. Following her Ph.D. Victoria completed postdoctoral training in electrophysiology and calcium channel regulation at the University of Calgary. Throughout her training in both the US and Canada, Victoria also taught undergraduate and graduate level courses in biochemistry, cell biology, advanced microscopy, health research literacy, and epidemiology.

Recent Publications

Stepanian, L, Laughlin, RS, Bacher, C, Izenberg, A, Hodgkinson, V, Dyck, A et al.. Chronic glucocorticoid management in neuromuscular disease: A survey of neuromuscular neurologists. Muscle Nerve. 2024. PMID:38411028

Price, TR, Hodgkinson, V, Westbury, G, Korngut, L, Innes, MA, Marshall, CR et al.. A Study on the Incidence and Prevalence of 5q Spinal Muscular Atrophy in Canada Using Multiple Data Sources. Can J Neurol Sci. 2024. 1-12 PMID:38178730

Walter, MC, Laforêt, P, van der Pol, WL, Pegoraro, E, 254th ENMC Workshop Study Group. 254th ENMC international workshop. Formation of a European network to initiate a European data collection, along with development and sharing of treatment guidelines for adult SMA patients. Virtual meeting 28 - 30 January 2022. Neuromuscul Disord. 2023.33 (6)511-522 PMID:37245491

Jewett, G, Khayambashi, S, Frost, GS, Beland, B, Lee, A, Hodgkinson, V et al.. Diagnostic criteria in amyotrophic lateral sclerosis: Time for a change. Muscle Nerve. 2022.66 (6)E34-E35 PMID:36116127

Jewett, G, Khayambashi, S, Frost, GS, Beland, B, Lee, A, Hodgkinson, V et al.. Gold Coast criteria expand clinical trial eligibility in amyotrophic lateral sclerosis. Muscle Nerve. 2022.66 (4)397-403 PMID:35673968

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