The Neuromuscular Disease Network for Canada

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October 2020 newsletter

Oct 5, 2020

The October 2020 issue of the NMD4C newsletter is now available!

Topics include a 10-year reflection of the Canadian Neuromuscular Disease Registry, our process for selecting clinical guidelines to adapt, our booth at the Myotonic Dystrophy Foundation virtual conference, recent and upcoming webinars, new research from NMD4C participants, and a member spotlight on steering committee member Stacey Lintern.

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We’re hiring a communications coordinator!

Oct 5, 2020

We are looking for a full-time communications coordinator for a term position ending March 2022. This position is located at the NMD4C coordination office at the CHEO Research Institute in Ottawa, Ontario, but will be working from home until at least June 2021.

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NMD4C investigator Bernard Brais to be awarded The Norman Saunders Jacob’s Ladder International Research Prize

Sep 29, 2020

We are very proud of our investigator Dr. Bernard Brais for receiving the 2020 Norman Saunders Jacob’s Ladder International Research Prize! Dr. Brais will be giving a talk at his award presentation on October 7, 2020, entitled “Ataxias with regional founder effects in Québec: Lessons on diversity.” 

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Latest edition of the Journal of Neuromuscular Diseases now online – Sep 2020

Sep 21, 2020

A new issue of the Journal of Neuromuscular Diseases has recently been released: Volume 7, Issue 4 (Sep 2020)

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CME-accredited webinar | Interdisciplinary guidelines for myotonic dystrophy type 1 (DM1) management across the spectrum

Sep 18, 2020

NMD4C and MDC are pleased to invite you to a CME-accredited webinar on interdisciplinary guidelines for myotonic dystrophy type 1 (DM1).

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NMD4C steering committee member Stacey Lintern appointed CEO of Muscular Dystrophy Canada

Sep 16, 2020

We are happy to congratulate our steering committee member Stacey Lintern for her recent appointment as CEO of our partner organization Muscular Dystrophy Canada (MDC)!

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World Muscle Society “25 Challenge” to support Muscular Dystrophy Canada

Sep 14, 2020

Many neuromuscular specialists and members of multidisciplinary neuromuscular teams in Canada are part of the World Muscle Society (WMS). Because people living with neuromuscular conditions have been hit particularly hard by the COVID-19 pandemic, WMS has asked all WMS2020 Congress attendees to get involved by taking on their very own WMS25 Challenge to raise money and awareness for relevant charities across the world. Muscular Dystrophy Canada (MDC), a funder and partner of NMD4C, has been selected as the neuromuscular organization of choice for Canada.

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Upcoming webinar: SMA Academy – Hot Topics in Basic SMA Research

Sep 11, 2020

NMD4C and Biogen are pleased to invite you to our SMA Academy session – Hot Topics in Basic SMA Research on Tuesday Sept. 22 at 5:00pm.

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September 2020 newsletter

Sep 10, 2020

Topics include Muscular Dystrophy Awareness Month, our new blog featuring NMD4C’s early career members, our recent advocacy work, recent and upcoming webinars, new research from NMD4C participants, and a member spotlight on steering committee member Dr. Rashmi Kothary.

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Upcoming webinar: Genomics 101

Aug 27, 2020

NMD4C and MDC are pleased to invite you to a CME-accredited webinar on September 1st, 2020 about genomics.

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About

The Neuromuscular Disease Network for Canada (NMD4C) is the pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.

Meet the Team

NMD4C includes 5 steering committee members, 12 main investigators, 2 headquarters staff, and many contributing collaborators and members.

Our Work

Explore our many projects in network development, training and education, patient registries, biobanking, clinical trial coordination resources, and clinical care guidelines.

Join Us

NMD4C welcomes the membership of NMD stakeholders across the country including patients and families, advocates, clinicians, researchers, biotechnology professionals, and pharmaceutical professionals.

News

Keep updated on research, webinars and events, training, clinical trials, and more! Sign up for our monthly newsletter.

Webinars & Events

Register for our monthly webinar series about neuromuscular disease and join us at upcoming events! Summaries of past webinars and events also available.

Early Career Blog

Membership has special benefits for people early in their career in neuromuscular disease. Meet some of our valued early career members!