The October 2020 issue of the NMD4C newsletter is now available!
Topics include a 10-year reflection of the Canadian Neuromuscular Disease Registry, our process for selecting clinical guidelines to adapt, our booth at the Myotonic Dystrophy Foundation virtual conference, recent and upcoming webinars, new research from NMD4C participants, and a member spotlight on steering committee member Stacey Lintern.Read More
We are looking for a full-time communications coordinator for a term position ending March 2022. This position is located at the NMD4C coordination office at the CHEO Research Institute in Ottawa, Ontario, but will be working from home until at least June 2021.Read More
NMD4C investigator Bernard Brais to be awarded The Norman Saunders Jacob’s Ladder International Research Prize
We are very proud of our investigator Dr. Bernard Brais for receiving the 2020 Norman Saunders Jacob’s Ladder International Research Prize! Dr. Brais will be giving a talk at his award presentation on October 7, 2020, entitled “Ataxias with regional founder effects in Québec: Lessons on diversity.”Read More
A new issue of the Journal of Neuromuscular Diseases has recently been released: Volume 7, Issue 4 (Sep 2020)Read More
CME-accredited webinar | Interdisciplinary guidelines for myotonic dystrophy type 1 (DM1) management across the spectrum
NMD4C and MDC are pleased to invite you to a CME-accredited webinar on interdisciplinary guidelines for myotonic dystrophy type 1 (DM1).Read More
We are happy to congratulate our steering committee member Stacey Lintern for her recent appointment as CEO of our partner organization Muscular Dystrophy Canada (MDC)!Read More
Many neuromuscular specialists and members of multidisciplinary neuromuscular teams in Canada are part of the World Muscle Society (WMS). Because people living with neuromuscular conditions have been hit particularly hard by the COVID-19 pandemic, WMS has asked all WMS2020 Congress attendees to get involved by taking on their very own WMS25 Challenge to raise money and awareness for relevant charities across the world. Muscular Dystrophy Canada (MDC), a funder and partner of NMD4C, has been selected as the neuromuscular organization of choice for Canada.Read More
NMD4C and Biogen are pleased to invite you to our SMA Academy session – Hot Topics in Basic SMA Research on Tuesday Sept. 22 at 5:00pm.Read More
Topics include Muscular Dystrophy Awareness Month, our new blog featuring NMD4C’s early career members, our recent advocacy work, recent and upcoming webinars, new research from NMD4C participants, and a member spotlight on steering committee member Dr. Rashmi Kothary.Read More
The Neuromuscular Disease Network for Canada (NMD4C) is the pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.
NMD4C includes 5 steering committee members, 12 main investigators, 2 headquarters staff, and many contributing collaborators and members.
Explore our many projects in network development, training and education, patient registries, biobanking, clinical trial coordination resources, and clinical care guidelines.
NMD4C welcomes the membership of NMD stakeholders across the country including patients and families, advocates, clinicians, researchers, biotechnology professionals, and pharmaceutical professionals.
Keep updated on research, webinars and events, training, clinical trials, and more! Sign up for our monthly newsletter.
Register for our monthly webinar series about neuromuscular disease and join us at upcoming events! Summaries of past webinars and events also available.