NMD4C

The October 2020 issue of the NMD4C newsletter is now available!

Topics include a 10-year reflection of the Canadian Neuromuscular Disease Registry, our process for selecting clinical guidelines to adapt, our booth at the Myotonic Dystrophy Foundation virtual conference, recent and upcoming webinars, new research from NMD4C participants, and a member spotlight on steering committee member Stacey Lintern.

We are looking for a full-time communications coordinator for a term position ending March 2022. This position is located at the NMD4C coordination office at the CHEO Research Institute in Ottawa, Ontario, but will be working from home until at least June 2021.

We are very proud of our investigator Dr. Bernard Brais for receiving the 2020 Norman Saunders Jacob’s Ladder International Research Prize! Dr. Brais will be giving a talk at his award presentation on October 7, 2020, entitled “Ataxias with regional founder effects in Québec: Lessons on diversity.” 

A new issue of the Journal of Neuromuscular Diseases has recently been released: Volume 7, Issue 4 (Sep 2020)

NMD4C and MDC are pleased to invite you to a CME-accredited webinar on interdisciplinary guidelines for myotonic dystrophy type 1 (DM1).

We are happy to congratulate our steering committee member Stacey Lintern for her recent appointment as CEO of our partner organization Muscular Dystrophy Canada (MDC)!

Many neuromuscular specialists and members of multidisciplinary neuromuscular teams in Canada are part of the World Muscle Society (WMS). Because people living with neuromuscular conditions have been hit particularly hard by the COVID-19 pandemic, WMS has asked all WMS2020 Congress attendees to get involved by taking on their very own WMS25 Challenge to raise money and awareness for relevant charities across the world. Muscular Dystrophy Canada (MDC), a funder and partner of NMD4C, has been selected as the neuromuscular organization of choice for Canada.

NMD4C and Biogen are pleased to invite you to our SMA Academy session – Hot Topics in Basic SMA Research on Tuesday Sept. 22 at 5:00pm.

Topics include Muscular Dystrophy Awareness Month, our new blog featuring NMD4C’s early career members, our recent advocacy work, recent and upcoming webinars, new research from NMD4C participants, and a member spotlight on steering committee member Dr. Rashmi Kothary.

NMD4C and MDC are pleased to invite you to a CME-accredited webinar on September 1st, 2020 about genomics.