The Neuromuscular Disease Network for Canada (NMD4C)
The Neuromuscular Disease Network for Canada (NMD4C) is the pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.
Patient Registries Working Group Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and networking tool for rare diseases. The data collected may be used for a range of purposes, from research into specific features of the disease to clinical trial feasibility planning and recruitment.…Read More
Dr. Lescouzères is a postdoctoral research fellow in Dr. Kessen Patten’s lab at the INRS-Institut Armand Frappier in Canada. She is currently working on zebrafish models of amyotrophic lateral sclerosis (ALS) with the aim of identifying new physiopathological mechanisms induced by mutations in the C9ORF72 gene, and new therapeutic targets.Read More
Human bodies are complex, difficult to understand biological machines. I have been forever fascinated by the mechanics and processes that make us tick. In my previous career as a biomedical engineer, I sought to study and then design processes that could help make machines work. I was always overjoyed when an engineering team could bring together multiple different and seemingly unrelated parts to create a machine that accomplished something wonderous. And there is no greater machine, in my eyes, than the human body.Read More