The Neuromuscular Disease Network for Canada (NMD4C)

The Neuromuscular Disease Network for Canada (NMD4C) is the new pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.

Knowledge Translation

The network’s KT group works to raise the standard of care and improve access to NMD therapies through the development, dissemination, and implementation of KT products (including clinical care guidelines).

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Patient Registries

Patient Registries Working Group Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and networking tool for rare diseases. The data collected may be used for a range of purposes, from research into specific features of the disease to clinical trial feasibility planning and recruitment.…

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Expert Patient Capacity Building

The EPCB group in collaboration with MDC and a group of patient-partners are working to establish expert patient capacity building in the Canadian neuromuscular community

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Clinical Trial Coordination

The NMD4C works to unite stakeholders in the Canadian neuromuscular clinical trial landscape including clinicians and trial sites, partner organizations, industry and people affected by NMDs.

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Early-Career

The NMD4C provide opportunities for EC members to encourage engagement in shaping the future of research and treatment surrounding NMDs.

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Clinical Curriculum Development

The clinical curriculum development group works towards standardising a curriculum for the training of clinical fellows in neuromuscular medicine in Canada.

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Biobanking

The NMD4C biobanking group seeks to unite the Canadian neuromuscular biobanking community, and provides information on current biobanks.

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Dr. Emanuela Pannia’s Early Career Blog

Dr. Pannia is a recipient of the NMD4C and MDC postdoctoral research fellowship for 2022, where her research will involve determining the molecular mechanisms and environmental modifiers of progressive liver disease in X-linked myotubular myopathy.

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Dr. Matthew Triolo’s Early Career Blog

Dr. Matthew Triolo is a Postdoctoral Fellow working within Dr. Mireille Khacho’s lab in the Faculty of Medicine at the University of Ottawa. Matthew first completed his BSc in Kinesiology and Health Science with a Minor in Biology at York University.

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Dr. Ian Smith’s Early Career Blog

Dr. Ian Smith, of The Ottawa Hospital's NeuroMuscular Centre

Dr. Smith is currently leading multiple translational research projects in a wide variety of neuromuscular conditions at The Ottawa Hospital’s NeuroMuscular Centre to facilitate rare disease diagnosis, develop more effective monitoring of neuromuscular disease progression and treatment response.

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