Announcing the 2025 Collaborative Research Training Award Recipients!!!

We are excited to announce the recipients of the 2025 NMD4C Collaborative Research Training Awards, which supports Canadian trainees in their efforts to advance neuromuscular disease research while strengthening national collaboration among neuromuscular research laboratories.

Congratulations to the following awardees: 

  • Madison Garibotti, MSc, PhD Candidate(York University)
    • Home Supervisor: Dr. Christopher Perry
    • Host Supervisor: Dr. Jean-Philippe Leduc-Gaudet
  • Marion Boyer, PhD Candidate (CERVO)
    • Home Supervisor: Dr. Silvia Pozzi
    • Host Supervisor: Dr. Thomas Durcan
  • Dr. Emilie Groulx-Boivin, MSc Candidate (Montreal Children's Hospital, McGill University)
    • Home Supervisor: Dr. Maryam Oskoui
    • Host Supervisor: Dr. Adam Kirton
  • Dr. Jeremy Slayter, MSc Candidate (Dalhousie University)
    • Home Supervisor: Dr. Colleen O'Connell
    • Host Supervisor: Dr. Gordon Jewett

These talented individuals will be using their awards to visit other Canadian laboratories, gaining hands-on experience and fostering collaboration within the neuromuscular research community.

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From June 8 to 10, 2026, we hosted the 3rd annual NMD4C Basic Research Summer School at the University of Ottawa. The program supported 28 neuromuscular research trainees (graduate students and postdoctoral fellows) from across Canada and focused on developing practical skills, strengthening core knowledge in neuromuscular research, and providing opportunities to present and discuss their work. Through a combination of tutorials, lectures, hands-on workshops in cutting-edge wet lab techniques, flash talks, and both structured and informal networking, participants engaged with faculty, exchanged ideas, and built connections across institutions and career stages. 

New Publication from the NMD4C Clinical Trial Network Strengthens Trial Capacity in Canada

We are pleased to share a new publication from the NMD4C Clinical Trial Network led by Kerri Lynn Schellenberg, Homira Osman, Maria Masnata, Rhiannon Hicks, Corinne Kagan, Ana Stosic, Stacey Lintern, Erin Beattie, Drs. Hanns Lochmüller, Craig Campbell, and Jean K Mah. This work focuses on the implementation of a coordinated Canadian neuromuscular clinical trial network to enhance trial readiness, capacity, and access in rare disease research.

Canadian-Led Phase II Studies Advance Vamorolone Evidence in Duchenne Muscular Dystrophy

Canadian-Led Phase II Studies Advance Vamorolone Evidence in Duchenne Muscular Dystrophy

NMD4C investigators contributed to two phase II studies evaluating vamorolone in boys with Duchenne muscular dystrophy across early childhood and adolescence, demonstrating safety, favorable pharmacokinetics, and potential efficacy. Led by Dr. Jean Mah and conducted across Canadian clinical trial sites with national and industry collaborators, the findings supported Health Canada approval of vamorolone as the first treatment for DMD in Canada. Leaders from both the clinical and patient advocacy communities, including Defeat Duchenne Canada, highlighted the impact of collaboration among patients, families, clinicians, and researchers in advancing care and improving access to new therapies.