NMD4C Monthly Newsletter
We give updates from our Biobanking working group including a list of Canadian neuromuscular biobanks, an introduction to the new clinical trial coordinator Bonnie Wooten, details about a Canadian Congenital Myotonic Dystrophy trial, a statement in response to high cost drugs for RD, and announce an event in partnership with Jesse’s Journey & MDC!
We give updates from our Expert Patient Capacity Building working group and the Clinical Research Curriculum Development working group including a list of Canadian Neuromuscular Fellowships, a statement in response to high cost drugs for RD, and announce an event in partnership with Jesse’s Journey & MDC!
We explore the birth of the ENMC Mid-Career Mentoring program, have a recap of the announcements and campaigns from Rare Disease Day 2021, and share our recent COVID-19 & Neuromuscular Disorders Ask the Experts documents!
Update from MDC on their Rare Disease Day plans for 2021, Rare Disease Day events from around the NMD community, and the introduction of the new Opportunities Page on the NMD4C site.
NMD4C’s plans for the year, an annual update from Jesse’s Journey, and new research from NMD4C participants.
Update from the Canadian Biobanking landscape, an update from our clinical curriculum development, and NMD4C’s Annual Investigator Meeting.
Introduction to NMD4C’s new communications coordinator, what KT services and consulting you would like the NMD4C to offer, and MDC’s upcoming virtual neuromuscular conference
A 10-year reflection of the CNDR, NMD4C’s process for selecting clinical guidelines to adapt, and NMD4C’s booth at the Myotonic Dystrophy Foundation virtual conference
Muscular Dystrophy Awareness Month, our new blog featuring NMD4C’s early career members, and NMD4C’s recent advocacy work
A national biobank/biorepository virtual catalogue, NMD4C and Muscular Dystrophy Canada (MDC)’s webinar series, exciting new grants from Jesse’s Journey, and MDC’s COVID-19 response