The Neuromuscular Disease Network for Canada

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NMD4C Monthly Newsletter

May 2022 Newsletter

Read about the upcoming poster presentation from the knowledge translation team, the upcoming neuromuscular conferences taking place in Canada for 2022, and the most recent early-career blog from NMD4C and MDC fellow Dr. Emanuela Pannia! Plus community events, new research, member spotlights and more!

April 2022 Newsletter

Read about our plans with MDC for a community of practice for allied healthcare professionals, a new infographic “Consensus-Based Care Recommendations for Children with Myotonic Dystrophy Type 1 (DM1)” from the Knowledge Translation team, and an introduction to the student-led Myogenesis Discussion Group! Plus job opportunities, events, new research, member spotlights and more!

March 2022 Newsletter

The March 2022 issue of the NMD4C newsletter is now available! Read about the new Congenital myasthenic syndrome registry from the CNDR, a roundup of the neuromuscular campaigns from Rare Disease Day 2022, and an exciting update from MDC on newborn screening! Plus job opportunities, events, new research, member spotlights and more!

February 2022 Newsletter

The February 2022 issue of the NMD4C newsletter is now available! Read about the new patient oriented research resources tool from the EPCB group, A uniquely Canadian clinical trial funded in part by Jesse’s Journey, an exciting collaboration between MDC and IL Canada to help inform the development of Canada’s first disability inclusion action plan! Plus job opportunities, events, new research, member spotlights and more!

January 2022 Newsletter

Read about our plans for 2022, the recipients of the NMD4C and MDC postdoctoral fellowship funding, and read the two recent early-career member blogs. Plus job opportunities, events, new research, member spotlights and more!

December 2021 Newsletter

The December 2021 issue of the NMD4C newsletter is now available! Read our 2021 Year in Review, learn about new ways the NMD4C can help you share your neuromuscular events, Dr. Hanns Lochmüller receives MDC’s Dr. George Karpati award, and we wrap up the final session of the Defeat Duchenne Canadian Conference! Plus new research, a postdoc opportunity with GRIMN, webinar recordings, members spotlights and more!

November 2021 Newsletter

We announce a networking event that is open to all NMD4C members, provide a KT update on their webinar series which began in September, and share the lineup for our third and final installment of the Defeat Duchenne Canadian Conference! Plus upcoming events and webinars, opportunities, meet the team spotlights, and more!

October 2021 Newsletter

We announce a new fellowship funding opportunity for early-career clinicians, share the appointments of early-career members of the network to the leadership of three working groups, and provide a summary of the various neuromuscular awareness days and months’ activities from September. Plus upcoming events and webinars, opportunities meet the team spotlights, and more!

September 2021 Newsletter

The September 2021 issue of the NMD4C newsletter is now available! We announce a new fellowship funding opportunity for postdoctoral neuromuscular researchers, share a positive funding decisions for a project led by a NMD4C steering committee member, and share details on our role in International myotonic dystrophy Awareness Day. Plus upcoming events and webinars, opportunities…

August 2021 Newsletter

We share a sneak peek of an exciting project we are working on with MDC, positive funding decisions for projects led by NMD4C members, and highlight some of the events and activities from around the community for SMA awareness month, happening in August! Plus upcoming events and webinars, meet the team spotlights, and more!