NMD4C Monthly Newsletter
The September 2021 issue of the NMD4C newsletter is now available! We announce a new fellowship funding opportunity for postdoctoral neuromuscular researchers, share a positive funding decisions for a project led by a NMD4C steering committee member, and share details on our role in International myotonic dystrophy Awareness Day. Plus upcoming events and webinars, opportunities…
We share a sneak peek of an exciting project we are working on with MDC, positive funding decisions for projects led by NMD4C members, and highlight some of the events and activities from around the community for SMA awareness month, happening in August! Plus upcoming events and webinars, meet the team spotlights, and more!
We share a new publication Guidance on gene replacement therapy in Spinal Muscular Atrophy: a Canadian perspective, and launch the new clinical trial concierge web page. We also share news about a new EPIC functionality helping to keep myotonic dystrophy patients safe at The Ottawa Hospital, the ENMC’s new Themed workshops, Knowledge Translation updates, a 2021 Walk4MD wrap-up & more!
We give updates from our Early Career working group, grant funding announcements from our partners, and a newborn screening announcement from MDC! Also check out our next webinar, a member spotlight on investigator Dr. Lawrence Korngut and events from around the community.
We give updates from our Biobanking working group including a list of Canadian neuromuscular biobanks, an introduction to the new clinical trial coordinator Bonnie Wooten, details about a Canadian Congenital Myotonic Dystrophy trial, a statement in response to high cost drugs for RD, and announce an event in partnership with Jesse’s Journey & MDC!
We give updates from our Expert Patient Capacity Building working group and the Clinical Research Curriculum Development working group including a list of Canadian Neuromuscular Fellowships, a statement in response to high cost drugs for RD, and announce an event in partnership with Jesse’s Journey & MDC!
We explore the birth of the ENMC Mid-Career Mentoring program, have a recap of the announcements and campaigns from Rare Disease Day 2021, and share our recent COVID-19 & Neuromuscular Disorders Ask the Experts documents!
Update from MDC on their Rare Disease Day plans for 2021, Rare Disease Day events from around the NMD community, and the introduction of the new Opportunities Page on the NMD4C site.
NMD4C’s plans for the year, an annual update from Jesse’s Journey, and new research from NMD4C participants.