In January 2020, NMD4C received three years of funding from the Canadian Institutes of Health Research (CIHR) and Muscular Dystrophy Canada (MDC). This enables us to work on activities to improve care standards, train the next generation of NMD researchers and clinicians, and strengthen research infrastructure for better research and more treatments. Read more about our work plan below.
Our work plan
NMD4C has developed a comprehensive three-year work plan covering network development, training and education, development of clinical guidelines and research resources and infrastructure.
Bringing people together to achieve joint goals and share expertise is a crucial foundation for better research and care. NMD4C is a sustainable and open network of NMD stakeholders working together across Canada.
Training and education
An extensive training, education and capacity-building program will train the next generation of neuromuscular healthcare professionals, researchers and patients in cutting-edge aspects of diagnosis, care, and therapy development.
Patient registries enable research into many aspects of a disease. The Canadian Neuromuscular Disease Registry (CNDR) supports academic and industry-led research and will be further developed and extended through NMD4C activities.
To support easy access to NMD biosamples by the researchers who need them, NMD4C will create a virtual Canadian NMD biobank, with a central catalogue linked to international initiatives such as EuroBioBank, and standardized SOPs, ethics guidance and data linkage tools.
Clinical trial coordination resources
Better coordination of information and improved exchange between trial sites will increase trial capacity across Canada by ensuring that some sites do not become over-committed while others have underused capacity.