Expanding National Clinical Outcome Assessment Capacity with Train(e)d
To improve diagnosis, monitor disease progression, and evaluate treatment response, NMD4C’s Outcome Measures and Natural History (OMNH) group is building a national framework for outcome measure development and infrastructure for natural history studies, integrating patient-reported outcome measures, and expand diagnostic imaging capacity.
This work will support clinical trials, real-world evidence generation, and improved care for individuals living with NMDs.
As knowledge gaps in outcome measures assessments have become evident, MDC together with the NMD4C have developed Train(e)d, an on-demand e-learning platform designed to address gaps in evaluator training and improve the consistency of clinical assessments across Canada.
This platform is a part of NMD4C’s goal of developing resources that aim to harmonize outcome measures and promote accessible, sustainable, and validated training, thus increasing clinical capacity on a national level.
Enrollment keys are required to access our course modules. These will be provided by email within the next business day after registering.
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2027 NMD4C–RARE.Qc Basic Science Research Summer School Applications Are Now Open!
Deadline: December 1, 2026
2027 NMD4C–RARE.Qc Basic Science Research Summer School Applications Are Now Open!
The summer school offers neuromuscular and rare disease research trainees the opportunity to participate in an intensive three-day training program focused on cutting-edge experimental and translational research techniques.
