Corinne Kagan
Patient Partner
NMD4C Involvement: Patient Oriented Research (POR)
Biography
Corinne Kagan recently stepped back from a career in health services research development and funding. As a Program Director working in the area of neurotrauma she has experience with health services, fostering research teams, strategic planning, knowledge translation and implementation. In her work she was a strong advocate for patient partner engagement and having all voices around the table.
Corinne lives with spinal muscular atrophy.
Recent Publications
Schellenberg, KL, Osman, H, Masnata, M, Hicks, R, Kagan, C, Stosic, A et al.. Implementation of a neuromuscular clinical trial network: a rare disease model for enhancing clinical trial readiness, capacity, and access in Canada. Orphanet J Rare Dis. 2026. PMID:42192450
Mortenson, P, Osman, H, Beattie, E, Kagan, C, Larocca, V, Maltais, C et al.. Building capacity for patient-engagement in neuromuscular disease research: A network project. J Neuromuscul Dis. 2026.13 (3)462-473 PMID:41400831
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