New Course ‘Skills for Patient Oriented Research’ Added to ImPORTND Training Platform

The third and final module of our patient-oriented research training platform, ImPORTND, is now available! ‘Skills for Patient-Oriented Research’ teaches specific skills to help with patient-oriented research (POR), including how to develop an effective patient engagement plan, share and listen to patient stories, and evaluate project engagement.

Register for 'Skills for Patient-Oriented Research' here!


ImPORTND Platform

The ImPORTND platform offers online, self-directed, free neuromuscular-specific training on how to conduct research that is informed by, and most meaningful to individuals living with neuromuscular diseases and are designed for all members of the study team: including researchers, lab staff, and patient- and family partners. ImPORTND consists of three modules: Readiness for Patient-Oriented Reseach, Inclusion/Diversity/Equity/Accessibility (IDEA), and Skills for Patient-Oriented Research. All are available in English (imPORTND) and French (inFORMERMN). Learn more about the development of these training modules on the NMD4C website.


Free Training and Support Services

Taking the first steps towards establishing a patient-oriented research strategy can be the most challenging, which is why we are partnering with Muscular Dystrophy Canada (MDC) to offer free training and support services for both research teams and patients to empower all members of the research team to conduct research that is informed by, and most meaningful to individuals living with neuromuscular diseases.

We are working with MDC to connect research teams with trained patient partners whose experiences and research interests align with the proposed area of research, and support to compensate patient-partners for their involvement.


Take the Training

Begin the training here! 

If you have any questions about the training, please contact network manager Erin Beattie at . 

ImPORTND logo with text reading 'new module - skills for patient oriented research'

Read next...

2024 NMD4C basic research summer school. Photo of attendees on the right.

NMD4C Host Inaugural Basic Research Summer School

Over May 27-28 2024, the NMD4C animal and cell-based research team hosted the first-ever annual basic research summer school for neuromuscular research trainees at McGill University in Montréal, QC. 

NMD4C investigator Dr Reshma Amin receives funding from CIHR for a grant to develop a framework for real-world evidence for NMDs in Canada

NMD4C Investigator Dr. Reshma Amin Leads Successful CIHR Grant Application to Establish a Framework for Real-World Evidence for Canadian Neuromuscular Diseases

Real-World Evidence for Canadian Neuromuscular Disease: Establishing a Framework for National Integration of Patient Reported Outcomes, Clinical Registry Data, Healthcare Utilization and Healthcare Associated Costs   The NMD4C is excited to share that network investigator Dr. Reshma Amin has been awarded funding from the CIHR to establish a framework for real-world evidence (RWE) for Canadian…

Spinal muscular atrophy outcome measures training registration open for December 3rd event.

Spinal Muscular Atrophy Outcome Measures Workshop (English Language)

The NMD4C will be hosting an English-language interactive training workshop on standardizing assessment practices in SMA outcome measures. 

Canadian Neuromuscular Community of Practice

NMD4C Launch Survey to Assess Familiarity and Experience in Outcome Measures in NMDs

As we anticipate novel treatments for other neuromuscular conditions, we would like to understand your familiarity and experience with the outcome measures in clinical trials underway or for treatments for NMDs approved in other jurisdictions through a short survey.


Dr. Cynthia Gagnon Receives 2024 Steinert Award, IDMC-15 Meeting to Take Place in Saguenay 

We are pleased to share that NMD4C steering committee member Dr. Cynthia Gagnon was honoured with a Steinert Award at the recent International Myotonic Dystrophy Consortium Meeting (IDMC-14) in Nijmegen, Netherlands! 

2024 Dr David Green Award winners from MDC

NMD4C Receive Excellence in Service Delivery Award and Network Investigators Honored as part of Muscular Dystrophy Canada’s 2024 Dr David Green Awards

We are excited to share that the NMD4C has been awarded the Excellence in Service Delivery Award, one of the annual Dr David Green Awards presented by Muscular Dystrophy Canada.