Clinical Trial Concierge Web Page Launch

The NMD4C are excited to announce that the new clinical trial (CT) Concierge web page is now live! 

 

The role of the CT Concierge is to act as an information broker for clinical trials for all Canadian clinical care sites and to support the NMD4C community with consistent knowledge, awareness, and access to information across sites.

 

This position is independently objective and designed to serve as an impartial resource, not funded by industry and is for all NM stakeholders.

 

The Concierge role was created to strengthen the clinical trial landscape and be a resource to all key stakeholders. A key priority of the concierge will be to work with Investigators to develop solutions to barriers associated with bringing neuromuscular clinical trials to Canada.

 

Visit the Concierge web page here, and discover the benefits of working with the Concierge for investigators, patients and families, industry, and other stakeholders.

CTCwebpage

Read next...

Website - NMD 2026 Fellows

Announcing the 2026 Neuromuscular Clinical Fellowship Award Recipients

We are excited to share that the 2026 Neuromuscular Clinical Fellowship Awards have been awarded! These fellowships strengthen clinical training in neuromuscular medicine and help prepare the next generation of specialists who will advance neuromuscular care across Canada.

Website - 2025 Clinical Summer School - Website

NMD4C Launches Clinical Summer School

We are excited to announce our inaugural Clinical Summer School, happening in Ottawa, Ontario on September 10–11, 2025. The event will feature hands-on workshops designed to complement the NMD4C Royal College–accredited National Neuromuscular Lecture Series and foster engagement among fellows.

BIND Study - Financial Burden of Neuromuscular Disorders

New BIND Study Highlights Financial Burden of Neuromuscular Disorders 

Celebrating the Publication of the BIND Study.
We are delighted to share that the BIND study, “Financial Toxicity and Its Determinants in Individuals Living With Neuromuscular Diseases,” has been published in Neurology (2025). This is the first of its kind in Canada to document the true costs of living with neuromuscular diseases

NEWS Website Featured Images

National Training Standards Approved for AFC in Neuromuscular Medicine

We’re pleased to announce that the Royal College of Physicians and Surgeons of Canada has granted final approval for the National Training Standards for the Area of Focused Competence (AFC) in Neuromuscular Medicine!

NEWS_TRAINED

Expanding National Clinical Outcome Assessment Capacity with Train(e)d

NMD4C and MDC have launched Train(e)d. This initiative is part of NMD4C’s broader efforts to build national capacity in outcome measures and natural history research in support of consistent and high-quality clinical assessments across Canada.

Website Featured Image

Announcing the 2025 Collaborative Research Training Award Recipients!!!

We are excited to announce the recipients of the 2025 NMD4C Collaborative Research Training Awards which supports Canadian trainees in their efforts to advance neuromuscular disease research while strengthening national collaboration among neuromuscular research laboratories.