International Myotonic Dystrophy Awareness Day Declared for September 15, 2021

The NMD4C are proud to be a part of a global alliance of myotonic dystrophy-focused organisations who in honour of Rare Disease Day 2021 have united to announce the declaration of International Myotonic Dystrophy Awareness Day to be observed each September 15th.

 

Raising awareness of myotonic dystrophy (DM) is critical as it is a rare, multi-systemic, progressive, inherited disease that affects successive family generations but is often misdiagnosed and poorly supported. Myotonic dystrophy is the most common form of adult muscular dystrophy and considered the most variable of all known conditions, yet there is currently no cure and there are no approved treatments.

 

Read the Full Release Here!

International DM day announced

Read next...

2026 Collaborative Awards Newsletter

Call for Applications: 2026 NMD4C Collaborative Research Training Awards

Application Deadline: June 15, 2026.
We are excited to share that the second cycle of our Collaborative Research Training Award program is now open for applications! 

30th-Research-Grant-Announcement-e1733933500883

Congratulations to our NMD4C Investigators on Receiving a 2025 Defeat Duchenne Canada Research Grant!

NMD4C is proud to celebrate two of our esteemed Investigators, Dr. James Dowling and Dr. Laura McAdam, who have been awarded research grants through the 2026 Defeat Duchenne Canada funding program!

NEWS_ Nomination and Application Deadlines

2026 NMD4C Application & Nomination Deadlines

As we start the new year, three important NMD4C opportunities are approaching their deadlines. Members are invited to nominate a researcher or publication for the Annual NMD4C Awards, apply to join the Basic Science Trainee Committee (BSTC), and apply to attend the 2026 NMD4C Basic Research Summer School, taking place June 8–10 under the leadership of Dr. Mireille Khacho. Registration for the summer school is free, with travel and accommodations covered for non‑local trainees.