International Myotonic Dystrophy Awareness Day Declared for September 15, 2021
The NMD4C are proud to be a part of a global alliance of myotonic dystrophy-focused organisations who in honour of Rare Disease Day 2021 have united to announce the declaration of International Myotonic Dystrophy Awareness Day to be observed each September 15th.
Raising awareness of myotonic dystrophy (DM) is critical as it is a rare, multi-systemic, progressive, inherited disease that affects successive family generations but is often misdiagnosed and poorly supported. Myotonic dystrophy is the most common form of adult muscular dystrophy and considered the most variable of all known conditions, yet there is currently no cure and there are no approved treatments.
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NMD4C Website Updates: Resource & Training Hubs
We’re excited to share some updates to the NMD4C website! We’ve created two hubs, the Resource Hub and the Training Hub to make it easier for all our members to find e-learning tools, and research resources!
Scheduled Maintenance
Our websites and training platforms will be undergoing maintenance from December 22 – 26 and 29 – 31, 2025. During this period, access may be limited until the work is complete. We appreciate your patience while this maintenance is carried out. If you require assistance during these times, please contact our Communications Coordinator, Lola Owoeye.
Applications are now open for the 2026 NMD4C Basic Research Summer School!!!
Application Deadline: January 27, 2026 | We are excited to announce that applications are now open for our third Basic Research Summer School for neuromuscular research trainees! Led by Dr. Mireille Khacho, the 2026 NMD4C Basic Research Summer School will be held from June 8th to 10th at the University of Ottawa.