Update to national strategy for drugs for rare diseases

National strategy for drugs for rare disease update

Upcoming neuromuscular conferences

Neuromuscular conferences to take place in Canada in 2023

Third imPORTND training module in development. 'Skills for patient-oriented research' will provide applied tools for patients and researchers to conduct patient-oriented research.

Third module of patient partner and researcher training in development

MDC walk and roll-4x3tp

Muscular Dystrophy Canada’s ‘Walk & Roll’ events taking place in-person across Canada

Defeat Duchenne Canada logo.

Defeat Duchenne Canada launches 2023 Research Grant Program

Oskoui clinical trial graphic_4x3

Investigator Dr. Maryam Oskoui Receives CIHR Grant to Fund Spinal Muscular Atrophy Clinical Trial

JP LG mytho study4x3

Early Career member Dr. Jean-Philippe Leduc-Gaudet identifies gene involved in regulating autophagy and skeletal muscle integrity

BIND study poster; graphic of computer and scale in centre, NMD4C logo with MDC and CNDR, OHRI in top right and link to study below.

New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

text reading Canadian FSHD registry, with icons in centre of page and CNDR and MDC logos underneath.

Muscular Dystrophy Canada, Canadian Neuromuscular Disease Registry, NMD4C partner to ensure Canadians can access Facioscapulohumeral muscular dystrophy (FSHD) cure(s)