Response to the Federal Government on Building a National Strategy for High-Cost Drugs for Rare Diseases
The Neuromuscular Disease Network for Canada (NMD4C) in partnership with Muscular Dystrophy Canada (MDC) and The Foundation for Gene & Cell Therapy (Jesse’s Journey) are pleased to provide a summary of our recommendations for consideration into the National Strategy for Rare Diseases.
Read the full summary letter
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NMD4C 2024 Year in Review
This year in review outlines a collection of achievements from the network over the past year.
NMD4C and MDC Award Fellowship Funding in NMD Research and Medicine
Together the Neuromuscular Disease Network for Canada (NMD4C) and Muscular Dystrophy Canada (MDC) are excited to announce the 2025 recipients of our neuromuscular fellowship funding competition to award postdoctoral fellowships in neuromuscular disease (NMD) research and clinical fellowships in neuromuscular medicine and electromyography!
NMD4C Basic Science Trainee Committee Provides Leadership Opportunity for Next Generation of Neuromuscular Researchers
The newly-formed Basic Science Trainee Committee represents the interests of trainees within the network, offering an opportunity for professional growth for future leaders in neuromuscular research.
NMD4C and MDC Host Second SMA Outcome Measure Training Workshop for Physiotherapists and Occupational Therapists Across Canada
The Spinal Muscular Atrophy (SMA) Motor Function Measures workshop organized by the NMD4C in collaboration with MDC took place in Montreal, Quebec on December 3rd, 2024 and was a resounding success. This workshop was established to harmonize assessment practices for the following SMA outcome measures across Canada
NMD4C Launch New Multi-Disciplinary Care of Neuromuscular Diseases Education Curriculum
The NMD4C is excited to share a new training and education initiative from our education team! The Multi-Disciplinary Care of Neuromuscular Diseases lecture series is a new CPD-Accredited 24-topic webinar series designed as an advanced curriculum for the practicing clinical audience to learn fundamentals of multi-disciplinary care for patients across a range of neuromuscular conditions.
