MDC and NMD4C Hiring Full-Time Clinical Trials and Community Practice Manager
Muscular Dystrophy Canada is hiring a full-time Clinical Trials and Community of Practice Manager to support our Clinical Trial Network and Community of Practice task groups and help bring clinical trials to Canada!
Join our team of dedicated colleagues and volunteers in breaking down barriers for the neuromuscular community. Work closely with clinicians, NMD4C investigators and members, industry, government, clinical trial Principal Investigators, the Canadian Neuromuscular Disease Registry (CNDR) and the Care and Trial Site Registry (CTSR) in Canada to ensure a coordinated approach to clinical trials.
Read the full job description here!
Read next...
Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
The NMD4C will be hosting an English-language interactive training workshop on standardizing assessment practices in SMA outcome measures.
NMD4C Launch Survey to Assess Familiarity and Experience in Outcome Measures in NMDs
As we anticipate novel treatments for other neuromuscular conditions, we would like to understand your familiarity and experience with the outcome measures in clinical trials underway or for treatments for NMDs approved in other jurisdictions through a short survey.
Dr. Cynthia Gagnon Receives 2024 Steinert Award, IDMC-15 Meeting to Take Place in Saguenay
We are pleased to share that NMD4C steering committee member Dr. Cynthia Gagnon was honoured with a Steinert Award at the recent International Myotonic Dystrophy Consortium Meeting (IDMC-14) in Nijmegen, Netherlands!
NMD4C Receive Excellence in Service Delivery Award and Network Investigators Honored as part of Muscular Dystrophy Canada’s 2024 Dr David Green Awards
We are excited to share that the NMD4C has been awarded the Excellence in Service Delivery Award, one of the annual Dr David Green Awards presented by Muscular Dystrophy Canada.
NMD4C Launch Canadian Neuromuscular Clinical Trial Network
We are thrilled to announce the launch of a Canadian neuromuscular clinical trial network (CTN) as a part of our clinical research work.
Training Session for Physiotherapists and Occupational Therapists on Outcome Measures in Spinal muscular atrophy hosted by Quebec SMA Network
This past March 23, the Quebec SMA Network (Réseau québécois de l’amyotrophie spinale – RQAS) in collaboration with the NMD4C and Muscular Dystrophy Canada (MDC) hosted an interactive training session for French-speaking physiotherapists and occupational therapists on assessment measures and practices for Spinal muscular atrophy (SMA). This training gathered clinicians to train and discuss SMA standardized outcome measures and work through current problems/challenges, to improve how these measures often tied to drug reimbursement are conducted.