Expanding National Clinical Outcome Assessment Capacity with Train(e)d
To improve diagnosis, monitor disease progression, and evaluate treatment response, NMD4C’s Outcome Measures and Natural History (OMNH) group is building a national framework for outcome measure development and infrastructure for natural history studies, integrating patient-reported outcome measures, and expand diagnostic imaging capacity.
This work will support clinical trials, real-world evidence generation, and improved care for individuals living with NMDs.
As knowledge gaps in outcome measures assessments have become evident, MDC together with the NMD4C have developed Train(e)d, an on-demand e-learning platform designed to address gaps in evaluator training and improve the consistency of clinical assessments across Canada.
This platform is a part of NMD4C’s goal of developing resources that aim to harmonize outcome measures and promote accessible, sustainable, and validated training, thus increasing clinical capacity on a national level.
Enrollment keys are required to access our course modules. These will be provided by email within the next business day after registering.
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2026 NMD4C Application & Nomination Deadlines
As we start the new year, three important NMD4C opportunities are approaching their deadlines. Members are invited to nominate a researcher or publication for the Annual NMD4C Awards, apply to join the Basic Science Trainee Committee (BSTC), and apply to attend the 2026 NMD4C Basic Research Summer School, taking place June 8–10 under the leadership of Dr. Mireille Khacho. Registration for the summer school is free, with travel and accommodations covered for non‑local trainees.
NMD4C Website Updates: Resource & Training Hubs
We’re excited to share some updates to the NMD4C website! We’ve created two hubs, the Resource Hub and the Training Hub to make it easier for all our members to find e-learning tools, and research resources!
Scheduled Maintenance
Our websites and training platforms will be undergoing maintenance from December 22 – 26 and 29 – 31, 2025. During this period, access may be limited until the work is complete. We appreciate your patience while this maintenance is carried out. If you require assistance during these times, please contact our Communications Coordinator, Lola Owoeye.