Lutgarde was born in 1959 and was diagnosed with Myasthenia Gravis in March 1994. She was educated to be a nurse and worked as a civil servant from 1980 to 2010. She was a member of the Flemish Myasthenia Gravis organisation from 1994 to 2023. Lutgarde has been a patient advocate since 1998 and a contact person for other Myasthenia Gravis patients. Since 2024, she is the President of the European Myasthenia Gravis Association (EuMGA). In 2023, she attended an in-depth training on patient advocacy organised by Patvocates and took an active role in the development of the EURO-NMD patient journey on Myasthenia Gravis.

Dr. Maggi is a neurologist specialized in neuromuscular disorders at Fondazione IRCCS Istituto Neurologico Carlo Besta, where he leads a clinical and research team involved in diagnosis, care, and clinical trials. He coordinates several Italian networks on congenital myasthenic syndromes, myofibrillar and distal myopathies, and adult SMA, and is part of the coordination board for the Italian Network of Laminopathies. At the European level, he co-leads the Neuromuscular Junction Working Group within the ERN-NMD and is active in various ERN and EAN committees. He also serves on the board of the Italian Association of Myology and the Editorial Board of Neuromuscular Disorders.