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CORD Webinar: Building the Baseline: How Does Canada Measure Up in Terms of Rare Disease Readiness?
CORD is pleased to invite you to their upcoming webinar, Building the Baseline: How Does Canada Measure Up in Terms of Rare Disease Readiness?
Join patients, caregivers, clinicians, researchers, policy makers and health system leaders for an interactive 60-minute indicator lab exploring how Canada can measure progress in rare disease readiness. Together, experts and participants will examine and rate key policy and delivery indicators to identify what matters most, where data gaps exist, and what a national readiness baseline could look like.
This session focuses on building a Canada-wide picture of rare disease readiness, not ranking provinces. Participants will help identify promising examples and shared opportunities for improvement as CORD develops a national readiness indicator inventory.
Before Webinar 3, you are encourages to complete the Rare Disease Readiness Survey.
CORD is inviting members of the rare disease community in Canada, including patients, caregivers, clinicians, researchers, patient organizations, policy partners, and health system leaders, to share their perspectives.
Date & Time: Jul 28, 2026 12:00 pm EDT
For more info please email the event organizer or visit the event website
Visit the Event Website
