Muscular Dystrophy Canada Announces Launch of National Neuromuscular Disease Real-World eXperience Registry
Muscular Dystrophy Canada has launched the Neuromuscular Disease Real-World eXperience Registry (NMD-RWx), a national, patient-powered initiative designed to capture the lived experiences of Canadians affected by neuromuscular disorders. The registry will help build Canadian real-world evidence to inform research, clinical trials, treatment access, policy and improvements in care. People living with neuromuscular disorders, as well as parents, caregivers and family members, are invited to participate and help shape the future of neuromuscular research and care in Canada.
To learn more information about NMD-RWx, visit muscle.ca/research/nmd-rwx/ today!
Read the full Announcement
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