Date & Time: May 14, 2026 01:00 PM EST

Join RareKids-CAN for a timely conversation with MP Marcus Powlowski (MP for Thunder Bay – Rainy River) alongside healthcare professionals and patient advocates from across Canada, on improving access to essential medications not currently available in the country. Introduced by MP Powlowski in Parliament on March 11, 2026, Bill C-265: An Act to Amend the Food and Drugs Act aims to modernize Health Canada’s Special Access Program. The legislation proposes amendments that streamline access to well-established therapies, reduce repetitive administrative burden for clinicians and pharmacists, and create more flexible, patient-centred pathways to innovative treatments.

Use the RareKids-CAN’s template to write to your MP and help ensure perspectives from healthcare professionals, patients, families, and Canadians are part of the conversation.

Learn what these changes could mean for patients, families, and healthcare providers — and how you can help support progress on this important issue. Register for our May 14th webinar: