Canadian Neuromuscular Community of Practice

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Date

Nov 12 2024

Time

19:00 - 20:00

Labels

Virtual

Physiatry Community of Practice – Sharing Session 4

Session Chair:

 Dr. Marianne Nury

Topic:

Friedreich’s Ataxia and the newly FDA-approved drug Omaveloxolone, based on the article “Efficacy of Omaveloxolone in Friedreich’s Ataxia: Delayed-Start Analysis of the MOXIe Extension” by Lynch et al., 2022.

Discussion:

  • The outcome measures used in the MOXIe studies and whether they align with what is currently used in the Canadian clinics
  • The current management of FA patients
  • How we can prepare FA patients for the possibility of accessing the first drug approved for FA

The event will take place on Tuesday, November 12th at 7pm ET/4pm PT/8pm AT/6pm MT. If you are interested in attending, please contact NMD4C Community of Practice Manager Maria Masnata at .

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