New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases
Led by NMD4C steering committee member Dr. Jodi Warman Chardon, this project has been awarded $449,030 over a 3-year period. The project’s goal is to assess the social and economic burden of Canadians living with neuromuscular disorders by using web-based surveys to assess quality-of-life, healthcare resource use, work productivity, and effect on schooling and careers.
Please share this study opportunity with those affected by NMDs and their families within your network!
More information about this project is available at here.
Read next...
NMD4C Website Updates: Resource & Training Hubs
We’re excited to share some updates to the NMD4C website! We’ve created two hubs, the Resource Hub and the Training Hub to make it easier for all our members to find e-learning tools, and research resources!
Scheduled Maintenance
Our websites and training platforms will be undergoing maintenance from December 22 – 26 and 29 – 31, 2025. During this period, access may be limited until the work is complete. We appreciate your patience while this maintenance is carried out. If you require assistance during these times, please contact our Communications Coordinator, Lola Owoeye.
Applications are now open for the 2026 NMD4C Basic Research Summer School!!!
Application Deadline: January 27, 2026 | We are excited to announce that applications are now open for our third Basic Research Summer School for neuromuscular research trainees! Led by Dr. Mireille Khacho, the 2026 NMD4C Basic Research Summer School will be held from June 8th to 10th at the University of Ottawa.