$6 million Brain Canada grant awarded to McGill to develop virtual integrated patient platform
NMD4C are pleased to share that The Neuro has received a $6 million grant from Brain Canada to fund a new Open Science patient registry to share data with researchers around the world and let patients see how their data is used to develop new treatments for neurological disorders.
The Neuro’s Virtual Integrated Patient Platform (NeuroVIPs) will contain multi-modal data from thousands of patient partners stored across the institution’s various clinical and research platforms, including The Neuro’s Open Biobank. NeuroVIPs will create a digital link between these platforms, so that a patient’s phenotype, genetics, neuroimaging, and other data can be accessed by research teams in one centralized location.
Integrated neuromuscular biobank
We are excited to continue to work with The Neuro and C-BIG as the hub for our virtual neuromuscular biobank, and to apply their neuroinformatic architecture to the cataloging of Canadian neuromuscular tissue samples.
Learn more about the NeuroVIPs project
Read the full press releases from McGill University and Brain Canada to learn more!
Read next...
Fourth Annual Clinical & Postdoctoral Fellowship Competition from NMD4C, MDC to Open Fall 2024
NMD4C together with Muscular Dystrophy Canada are excited to announce that our annual Neuromuscular Fellowship Competition will open again for a fourth year on September 3, 2024!
NMD4C Wraps up Second Year of Training Series for Canadian Neuromuscular Clinical Fellows
We’re excited to share that the second annual National Neuromuscular Lecture Series (NNLS) finished last week!
NMD4C Host Inaugural Basic Research Summer School
Over May 27-28 2024, the NMD4C animal and cell-based research team hosted the first-ever annual basic research summer school for neuromuscular research trainees at McGill University in Montréal, QC.
NMD4C Investigator Dr. Reshma Amin Leads Successful CIHR Grant Application to Establish a Framework for Real-World Evidence for Canadian Neuromuscular Diseases
Real-World Evidence for Canadian Neuromuscular Disease: Establishing a Framework for National Integration of Patient Reported Outcomes, Clinical Registry Data, Healthcare Utilization and Healthcare Associated Costs The NMD4C is excited to share that network investigator Dr. Reshma Amin has been awarded funding from the CIHR to establish a framework for real-world evidence (RWE) for Canadian…
Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
The NMD4C will be hosting an English-language interactive training workshop on standardizing assessment practices in SMA outcome measures.
NMD4C Launch Survey to Assess Familiarity and Experience in Outcome Measures in NMDs
As we anticipate novel treatments for other neuromuscular conditions, we would like to understand your familiarity and experience with the outcome measures in clinical trials underway or for treatments for NMDs approved in other jurisdictions through a short survey.