CNDR Officially Launches Canadian FSHD Dataset to Support Research and Therapy Readiness
The Canadian Neuromuscular Disease Registry (CNDR) is excited to announce the official launch of its new Facioscapulohumeral Muscular Dystrophy (FSHD) dataset this fall.
“This addition enhances our ability to directly support our CNDR sites in collecting high-quality, real-world data that drives FSHD research, expands knowledge, and supports future therapy readiness for individuals living with FSHD across Canada. We look forward to working closely with clinicians, researchers, and the FSHD community to deepen our understanding of the disease and strengthen coordination between research and clinical care nationwide.”
– Dr. Lisa Marie Langevin, Clinical Program Manager, Canadian Neuromuscular Disease Registry (CNDR)
Following previous updates on CNDR’s FSHD initiatives, NMD4C looks forward to seeing the continued impact of the new dataset on research and care for individuals living with FSHD.
Read next...
Call for Applications: 2026 NMD4C Collaborative Research Training Awards
Application Deadline: June 15, 2026.
We are excited to share that the second cycle of our Collaborative Research Training Award program is now open for applications!
Congratulations to our NMD4C Investigators on Receiving a 2025 Defeat Duchenne Canada Research Grant!
NMD4C is proud to celebrate two of our esteemed Investigators, Dr. James Dowling and Dr. Laura McAdam, who have been awarded research grants through the 2026 Defeat Duchenne Canada funding program!
2026 NMD4C Application & Nomination Deadlines
As we start the new year, three important NMD4C opportunities are approaching their deadlines. Members are invited to nominate a researcher or publication for the Annual NMD4C Awards, apply to join the Basic Science Trainee Committee (BSTC), and apply to attend the 2026 NMD4C Basic Research Summer School, taking place June 8–10 under the leadership of Dr. Mireille Khacho. Registration for the summer school is free, with travel and accommodations covered for non‑local trainees.