The Neuromuscular Disease Network for Canada

funder-logos_nmd4c

Congenital Myotonic Dystrophy Trial Now Recruiting

The NMD4C is excited to share that an international randomized, multicenter, double-blind, placebo-controlled, phase 2/3 clinical trial testing the safety and efficacy of Tideglusib in Congenital Myotonic Dystrophy (CDM) patients aged 6-16 has begun recruiting. This is the first CDM trial to take place in Canada, even though CDM is one of the more common neuromuscular diseases in Canada, affecting more than one in 50,000 live births. The two Canadian sites are the Children’s Hospital London Health Sciences Centre (LHSC) in London, ON and the Children’s Hospital of Eastern Ontario (CHEO) in Ottawa, ON, with Drs. Craig Campbell and Hanns Lochmüller as Principal Investigators.

Both the London and Ottawa sites are open for recruitment; contact information for both sites is located below. If you would like to learn more about the eligibility criteria and for further information, please visit the ClinicalTrials.gov site to find detailed information!

LHSC site: Rhiannon Hicks, , (519)-685-8441.

CHEO site: Emilie Hill-Smith, , 613-737-7600 ext. 4014.

Our network brings together clinicians, researchers, and people with neuromuscular disease across the country.

Read next...

KT infographic logo

Knowledge Translation Team Share Clinical Practice Guideline Infographic

The Knowledge Translation team are are glad to share an infographic of the clinical practice guideline “Promoting Sexuality and Intimate Relationships in Adults with a NMD in Occupational Therapy”

Upcoming neuromuscular conferences

Upcoming Neuromuscular Conferences in 2022

This year we are excited to anticipate the return of in-person conferences, which provide an invaluable training and networking experience to all members of the neuromuscular community and which have been dearly missed over the past two years. In 2022, Canada will host several major neuromuscular conferences, both domestic and international. Please take a moment…

Knowledge Translation Canada logo

Network’s Approach to Adapting Knowledge Translation Strategies for Neuromuscular Diseases: Knowledge Translation Canada Scientific Meeting

on behalf of the NMD4C Knowledge Translation team, Drs. Cynthia Gagnon and Homira Osman have had a poster presentation accepted for inclusion at the Knowledge Translation Canada (KT Canada) 2022 Virtual Scientific Meeting.

Dr. Emanuela Pannia EC Blog

Read NMD4C and MDC Postdoc Fellowship Recipient Dr. Emanuela Pannia’s Early-Career Blog

Read the latest early career blog post, from NMD4C and MDC Postdoc Fellowship Recipient Dr. Emanuela Pannia.

Clinical practice guideline in NMD infographic logo

Knowledge Translation Team Infographic “Consensus-based Care Recommendations for Children with Myotonic Dystrophy Type 1”

The Knowledge Translation team are are glad to share an infographic of the Myotonic Dystrophy Foundation’s “Consensus-based Care Recommendations for Children with Myotonic Dystrophy Type 1“, with the contribution of Dr. Craig Campbell (NMD4C investigator). The infographic shares a few key clinical points to consider and offers direct link and QR code to download the complete guideline.

CoP-MDC

Community of Practice for Neuromuscular Allied Healthcare Members: MDC and NMD4C Begin Consultations

The Neuromuscular Disease Network for Canada in partnership with Muscular Dystrophy Canada, is investigating ways to better support allied healthcare professionals that work with clients/patients affected by neuromuscular disorders and their families. We wish to introduce and implement a Community of Practice for allied healthcare professionals this year, but first we would like to complete a needs assessment and seek your valued input.