Defeat Duchenne Canada Launches New Clinical Trial Finder Tool

Defeat Duchenne Canada is proud to announce the launch of the first Clinical Trial Finder Tool for Duchenne and Becker muscular dystrophy in Canada.

Visit the Clinical Trial Finder Tool

Duchenne and Becker muscular dystrophy are progressive neuromuscular disorders with no cure. Affecting approximately 1 in every 5,000 boys in Canada, both Becker and Duchenne are caused by mutations within the dystrophin gene, one of the largest genes in the body responsible for strengthening muscles and protecting them from injury.

When the organization first began its quest for a cure twenty-six years ago, there was very little research and no clinical trials. Since then, numerous organizations, like Defeat Duchenne Canada, have transformed the landscape by investing in the most promising science focused on prevention, improved treatments, and a better quality of life for individuals living with Duchenne and Becker.

“We have developed an innovative Clinical Trial Finder Tool for those living with Duchenne and Becker muscular dystrophy. The tool helps gather comprehensive information on existing and pending clinical trials in Canada and beyond, allowing our community to easily personalize and navigate the latest information to help make informed choices about their participation,” shares Nicola Worsfold, Vice-President of Research, Advocacy and Education at Defeat Duchenne Canada.

“Being involved in a clinical trial is not a decision that can be made lightly,” she continues. “While it offers the possibility of hope, it also involves many sacrifices from the whole family. We want to empower our community with accurate, up-to-date information to facilitate informed decision making with their health care team.”

Watch the Defeat Duchenne Canada webinar launch of their Clinical Trial Finder Tool

 

Defeat Duchenne Canada has built a foundation of strong partnerships with leading scientists and industry partners to improve care for individuals living with Duchenne and Becker. When they heard the need from their community for more resources regarding clinical trials, the organization turned to Lumiio, a global digital health company specializing in real-world data collection services that drive health outcomes.
“We were thrilled to be able to work with Defeat Duchenne Canada in the development of a tool that helps close knowledge gaps around clinical trial opportunities,” said Josh Lounsberry, Chief Strategy Officer at Lumiio, “The needs of the Duchenne community align perfectly with Lumiio’s mission of accelerating health outcomes through data.”

Learn more about the Clinical Trial Finder Tool defeatduchenne.ca/clinicaltrials

 

Read the full press release from Defeat Duchenne Canada

Defeat Duchenne Canada's Clinical Trial Finder Tool

Read next...

2025 Basic Research summer school to be held over May 7-8, 2025 at York University.

2025 NMD4C Basic Research Summer School to be Held at York University

Save the Date! We are thrilled to announce that we will be hosting our second annual basic research summer school for neuromuscular research trainees over May 7-8, 2025 at York University in Toronto, ON.

Call for applications to join the NMD4C trainee committee

Call for Applications: Join the NMD4C’s Basic Science Trainee Committee

We are excited to share an opportunity for Canadian neuromuscular trainees to help shape the NMD4C’s basic science trainee strategy by joining the NMD4C Basic Science Trainee Committee (BSTC)!

NMD4C honored to reveive 2024 Dr David Green Award for Excellene in Service Delivery from MDC

NMD4C Honored with Dr David Green Award for Excellence in Service Delivery at MDC Awards Gala

Dr Jodi Warman-Chardon accepted the 2024 Dr David Green Excellence in Service Delivery Award on behalf of the network at the MDC Awards Gala.

2024 NMD4C Annual Meeting

NMD4C Welcomed Investigators to Annual Meeting in Calgary

Thank you to our investigators who attended the Annual NMD4C Meeting on September 27th in Calgary! Our meeting program consisted of presentations from pillar and task leads which highlighted their groups’ achievements and progress made to date.

LEARNMD logo

NMD4C Launch Educational Platform LEARNMD

LEARNMD is an online educational platform offering talks and sessions on a wide range of neuromuscular topics presented by leading clinical and scientific experts worldwide.

CNDR logo4x3

October 2024 Updates from the Canadian Neuromuscular Disease Registry

The Canadian Neuromuscular Disease Registry (CNDR) is pleased to share updates on several exciting initiatives this fall!