Dr. Bernard Brais Featured in The Economist Report on Navigating Rare Neurological Diseases
NMD4C Investigator Dr. Bernard Brais is featured as a Canadian expert in The Economist Business Intelligence Unit’s recent report Navigating Rare Neurological Diseases: Meeting the Challenge for Policy Makers, Patients and Healthcare Professionals.
The report aims to distill and illuminate the policy challenges that rare diseases face, focusing particularly on rare neurological diseases (RNDs). Using data and consultation from North American and European experts, the report explores methods to address the policy challenges identified.
Dr. Brais provides perspective and expertise on the Canadian landscape of rare neurological disease, highlighting among other topics the access to diagnosis and treatment for patients, and the role of non-profit advocacy and support groups in providing resources and patient support.
The full report is available to read now!
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NMD4C Website Updates: Resource & Training Hubs
We’re excited to share some updates to the NMD4C website! We’ve created two hubs, the Resource Hub and the Training Hub to make it easier for all our members to find e-learning tools, and research resources!
Scheduled Maintenance
Our websites and training platforms will be undergoing maintenance from December 22 – 26 and 29 – 31, 2025. During this period, access may be limited until the work is complete. We appreciate your patience while this maintenance is carried out. If you require assistance during these times, please contact our Communications Coordinator, Lola Owoeye.
Applications are now open for the 2026 NMD4C Basic Research Summer School!!!
Application Deadline: January 27, 2026 | We are excited to announce that applications are now open for our third Basic Research Summer School for neuromuscular research trainees! Led by Dr. Mireille Khacho, the 2026 NMD4C Basic Research Summer School will be held from June 8th to 10th at the University of Ottawa.