Expanding National Clinical Outcome Assessment Capacity with Train(e)d
To improve diagnosis, monitor disease progression, and evaluate treatment response, NMD4C’s Outcome Measures and Natural History (OMNH) group is building a national framework for outcome measure development and infrastructure for natural history studies, integrating patient-reported outcome measures, and expand diagnostic imaging capacity.
This work will support clinical trials, real-world evidence generation, and improved care for individuals living with NMDs.
As knowledge gaps in outcome measures assessments have become evident, MDC together with the NMD4C have developed Train(e)d, an on-demand e-learning platform designed to address gaps in evaluator training and improve the consistency of clinical assessments across Canada.
This platform is a part of NMD4C’s goal of developing resources that aim to harmonize outcome measures and promote accessible, sustainable, and validated training, thus increasing clinical capacity on a national level.
Enrollment keys are required to access our course modules. These will be provided by email within the next business day after registering.
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AFC in Neuromuscular Medicine Approved!
We’re pleased to announce that the Royal College of Physicians and Surgeons of Canada has granted final approval for the Area of Focused Competence (AFC) in Neuromuscular Medicine! We extend our sincere thanks to all contributors — special thanks to Dr. Hernan Gonorazky and Dr. Erin O’Ferrall — whose dedication and expertise made this milestone possible.
Announcing the 2025 Collaborative Research Training Award Recipients!!!
We are excited to announce the recipients of the 2025 NMD4C Collaborative Research Training Awards – Madison Garibotti, Marion Boyer, Dr. Emilie Groulx-Boivin, Dr. Jeremy Slayter – which supports Canadian trainees in their efforts to advance neuromuscular disease research while strengthening national collaboration among neuromuscular research laboratories.
NMD4C Hosts 2nd Annual Basic Research Summer School at York University!
The NMD4C is excited to announce a new program for neuromuscular research trainees that will support collaboration opportunities between Canadian research labs.
Making Science Accessible for All Through Collaboration Between Neuromuscular Researchers and Patient Partners!
The NMD4C is excited to announce a new program for neuromuscular research trainees that will support collaboration opportunities between Canadian research labs.
NMD4C Members Receive Dr David Green Awards from Muscular Dystrophy Canada
We are excited to share that several NMD4C investigators and members have been honored with a Dr David Green Award from Muscular Dystrophy Canada!
Lower Extremity Muscle Strengthening Program in Myotonic Dystrophy Type 1 from Groupe de recherche interdisciplinaire sur les maladies neuromusculaires
The Groupe de recherche interdisciplinaire sur les maladies neuromusculaires (GRIMN) recently created a video aimed at health professionals that provides an in-depth explanation of the Myotonic dystrophy (DM1) training parameters used in their studies.