International Myotonic Dystrophy Awareness Day 2022 to Take Place September 15th
The NMD4C alongside Muscular Dystrophy Canada (MDC) are proud to be members of a global alliance of over 50 myotonic dystrophy-focused organizations who have once again united to celebrate Myotonic Dystrophy Families Day this past July 23rd, and International Myotonic Dystrophy Awareness Day on September 15th, 2022.
Read the full press release from the Myotonic Dystrophy Foundation to learn more about the 2022 awareness day!
In addition to the Alliance’s core mission of raising myotonic dystrophy awareness among the general population, many members of the Global Alliance for Myotonic Dystrophy Awareness are also leading efforts in two specific areas of focus to maximize our impact in 2022:
1. Awareness and education among clinical care teams,
2. Clinical trial readiness for participants.
Read the original press release from the inaugural Awareness Day to learn more about this alliance!
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2027 NMD4C–RARE.Qc Basic Science Research Summer School Applications Are Now Open!
Deadline: December 1, 2026
2027 NMD4C–RARE.Qc Basic Science Research Summer School Applications Are Now Open!
The summer school offers neuromuscular and rare disease research trainees the opportunity to participate in an intensive three-day training program focused on cutting-edge experimental and translational research techniques.
