International Myotonic Dystrophy Awareness Day 2022 to Take Place September 15th
The NMD4C alongside Muscular Dystrophy Canada (MDC) are proud to be members of a global alliance of over 50 myotonic dystrophy-focused organizations who have once again united to celebrate Myotonic Dystrophy Families Day this past July 23rd, and International Myotonic Dystrophy Awareness Day on September 15th, 2022.
Read the full press release from the Myotonic Dystrophy Foundation to learn more about the 2022 awareness day!
In addition to the Alliance’s core mission of raising myotonic dystrophy awareness among the general population, many members of the Global Alliance for Myotonic Dystrophy Awareness are also leading efforts in two specific areas of focus to maximize our impact in 2022:
1. Awareness and education among clinical care teams,
2. Clinical trial readiness for participants.
Read the original press release from the inaugural Awareness Day to learn more about this alliance!
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Could You Be Our Next Awardee? Meet Jules Granet, NMD4C’s 2026 Publication of the Year Awardee
Nominations are open till by 18 January 2027!
In 2026, Jules Granet, a PhD Candidate at McGill University and trainee in Dr. Natasha Chang’s laboratory received an NMD4C Publication of the Year Award for research investigating how muscle stem cell dysfunction contributes to impaired muscle regeneration in Duchenne muscular dystrophy. Nominate yourself or a neuromuscular colleague whose research, clinical care, leadership, advocacy, or community contributions deserve to be recognized.
Early Bird Registration Now Open: 8th Ottawa International Conference On Neuromuscular Disease & Biology
We are happy to announce that early bird registration is now open for the 8th Ottawa International Conference On Neuromuscular Disease & Biology which will be held on October 14-16, 2027 at the Fairmont Château Laurier in Ottawa, Canada. Now under the leadership of NMD4C Investigators; Dr. Mireille Khacho, Dr. Hanns Lochmuller, Dr. Bernard Jasmin, and Dr. Rashmi Kothary.
NMD4C Launches Pre‑Clinical Expertise & Resource Database of Canadian Neuromuscular Labs
NMD4C announces the launch of its Pre-Clinical Expertise & Resources Database, a resource designed to showcase neuromuscular research expertise, specialized techniques, unique resources, and training opportunities across Canada.