The Neuromuscular Disease Network for Canada

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International Myotonic Dystrophy Awareness Day Declared for September 15, 2021

The NMD4C are proud to be a part of a global alliance of myotonic dystrophy-focused organisations who in honour of Rare Disease Day 2021 have united to announce the declaration of International Myotonic Dystrophy Awareness Day to be observed each September 15th.

 

Raising awareness of myotonic dystrophy (DM) is critical as it is a rare, multi-systemic, progressive, inherited disease that affects successive family generations but is often misdiagnosed and poorly supported. Myotonic dystrophy is the most common form of adult muscular dystrophy and considered the most variable of all known conditions, yet there is currently no cure and there are no approved treatments.

 

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International DM day announced

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NMD4C, MDC and CSCN to Launch Clinical Fellowship Funding Competition

The Neuromuscular Disease Network for Canada (NMD4C) together with Muscular Dystrophy Canada (MDC) and the Canadian Society of Clinical Neurophysiologists (CSCN) are excited to announce the launch of a funding competition to award three new national clinical fellowship awards in neuromuscular medicine and electromyography!

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Early-Career Members Join NMD4C Working Groups

The NMD4C is happy to announce that six early-career network members have been appointed to leadership roles on three NMD4C working groups: Biobanking, Clinical and Translational Empowerment of Early-Career Members, and Knowledge Translation. 

Neuromuscular Awareness September

Neuromuscular Awareness Events September Roundup

September is a busy month for neuromuscular disease awareness, as the month contains several awareness days as well as month-long campaigns. Take a moment to read about the different events that took place during September, and how different organizations and individuals raised awareness, educated, and took action for these different NMDs.

Natl PD Appreciation week (1)

National Postdoc Appreciation Week September 20-24, 2021

September 20-24 is National Postdoc Appreciation Week, and the NMD4C would like to take this time to recognize and celebrate the contributions of our postdoctoral members to the neuromuscular community. The scientific achievements, research, and discoveries from postdoctoral fellows advances our understanding of neuromuscular diseases.

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CIHR Grant Funding for BIND Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

The NMD4C is happy to share that a project application featuring many NMD4C members on Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases has been awarded a Canadian Institute…

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Session Two of Defeat Duchenne Canadian Conference Addressing Standards of Care in Canada this Weekend

September 7th is World Duchenne Awareness Day. Over the past decades, life expectancy of individuals affected by Duchenne muscular dystrophy (DMD) has increased significantly, and adults with DMD are not…