The Neuromuscular Disease Network for Canada


July Knowledge Translation Update

Coming Soon – Series of Webinars on Knowledge Translation

Knowledge translation (KT) is a dynamic and iterative process that includes dissemination of knowledge to provide more effective health services and products, and to strengthen the health care system [1]. KT products (e.g., leaflets, videos, websites) are important tools to inform health care providers, patients and families about the process of KT, thereby ensuring that they have the confidence and knowledge needed to bring their expertise forward to guide discussions and inform decisions regarding health care, research, and therapy development for Canadians living with Neuromuscular Diseases (NMD). 

The NMD4C is excited to announce the launch of a series of webinars that will support KT abilities, with the first webinar to be held on Wednesday, September 29th. 


Please stay tuned for more details to come!


Meet our Newest Team Member : Samar Muslemani

We are happy to welcome Ms. Samar Muslemani to the KT team. Samar is an occupational therapist and research student who will support the KT team and act as a knowledge broker for the NMD4C.

Samar will take over her role from Dr. Valérie Gagné; the NMD4C are very appreciative of all the hard work that Dr. Gagné has done for the network over the past year, and we would like to wish her the best in her future pursuits.




Read next...

CIHR logo

NMD4C members awarded CIHR grants for oculopharyngeal dystrophy, spinal muscular atrophy research

The NMD4C is happy to share that two project applications from NMD4C members on oculopharyngeal dystrophy (OPMD) and spinal muscular atrophy (SMA)  have been awarded Canadian Institute of Health Research (CIHR) research grants in their recent round of funding decisions!

1x1Fellowship teaser

MDC & NMD4C Fellowship Funding Awards Coming Soon

The NMD4C in partnership with Muscular Dystrophy Canada (MDC) are excited to share that we will be launching a competition later this year to award funding for two postdoctoral research and two clinical fellowships! 


August is SMA Awareness Month: See What’s Happening Around the Community

August is Spinal muscular atrophy (SMA) awareness month, and the NMD4C would like to take this time to recognize the work that our members and partners have contributed over the past year. While the network is involved in SMA-related activities year-round, August provides an opportunity to highlight this work and the impact it has on those affected by SMA.


Research Opportunity: PhD in Translational Mitochondrial/Stem-Cell Research at the uOttawa Centre for Neuromuscular Disease

The NMD4C are excited to share a new research opportunity in Translational Mitochondrial/Stem-Cell Research at the uOttawa Centre for Neuromuscular Disease. The research team is looking for a talented PhD student who is interested in studying how impairments in mitochondrial dynamics and function alter the metabolic profile and maintenance of muscle stem cells in patients with rare mitochondrial and neuromuscular diseases.


Myotonic Dystrophy: EPIC Functions at The Ottawa Hospital

Inspired by a DM family from Ottawa, The Ottawa Hospital (TOH) medical information team has designed a new Best Practice Advisories (BPA) for their electronic health record system EPIC, to keep DM patients safe throughout the hospital. 


European Neuromuscular Centre Themed Workshops

The NMD4C is excited to share that the European Neuromuscular Centre (ENMC) has announced a new initiative: Themed Workshops! The call for organisers who would like to apply for an ENMC workshop on this theme is now open and will run until September 30, 2021.