The Neuromuscular Disease Network for Canada

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Letter of Support to Reduce the Timing Between COVID-19 Vaccine Doses for Patients With Neuromuscular Diseases

The Neuromuscular Disease Network for Canada and MDC together with neurologists, Jesse’s Journey and GBS-CIDP Canada, have submitted a letter to Health Minister Patty Hajdu, Dr. Quach-Thanh, Chair of NACI and each provincial health minister urging them to further nuance the list of those who should be prioritized for their second dose of COVID-19 vaccine by including adults affected by neuromuscular disease.

Read the full press release from MDC here.

Read the open letter to Health Minister Patty Hajdu here.

Read the open letter to NACI here.

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Introducing NMD4C Clinical Trial Concierge Bonnie Wooten

To facilitate the network’s Clinical Trial Coordination activities and to meet this demand, the NMD4C is excited to announce the hiring of Bonnie Wooten, who has joined the team in her role as the Clinical Trial Concierge. In her role, Bonnie will work with all stakeholders including clinicians, families, and industry.

Our network brings together clinicians, researchers, and people with neuromuscular disease across the country.

Congenital Myotonic Dystrophy Trial Now Recruiting

The NMD4C is excited to share that an international clinical trial in Congenital Myotonic Dystrophy (CDM) has begun recruiting. This is the first CDM trial to take place in Canada.

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Defeat Duchenne Canadian Conference 2021: Addressing Duchenne muscular dystrophy (DMD) Standards of Care in Canada

The Neuromuscular Disease Network for Canada (NMD4C) in partnership with Jesse’s Journey and Muscular Dystrophy Canada (MDC), is proud to announce the inaugural Defeat Duchenne Canadian Conference, the first national summit solely focused on Duchenne muscular dystrophy (DMD) for health care providers across Canada.

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Biobanking Working Group Update

NMD4C’is committed to strengthening the biobanking resources available to Canadian neuromuscular researchers. The NMD4C biobanking group has identified eight biobanks that collect and prepare a variety of samples covering a range of neuromuscular diseases

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Read Dr. Amanda Yaworski’s Early Career Blog

Read the latest early career blog post, from NMD4C member Dr. Amanda Yaworski. 

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Clinical Research Curriculum Development Working Group Update

The NMD4C is committed to educating the next generation of NMD stakeholders, and endeavors to optimize the training of neuromuscular clinicians in Canada through standardization of a fellowship curriculum, preparing an application for an Area of Focused Competency (AFC) by the Royal College of Physicians and Surgeons of Canada in the field of Neuromuscular Medicine, and holding quarterly CPD-accredited NM Mystery Case Rounds.