Muscular Dystrophy Canada, Canadian Neuromuscular Disease Registry, NMD4C partner to ensure Canadians can access Facioscapulohumeral muscular dystrophy (FSHD) cure(s)

Muscular Dystrophy Canada, Canadian Neuromuscular Disease Registry, NMD4C partner to ensure Canadians can access Facioscapulohumeral muscular dystrophy (FSHD) cure(s)

Muscular Dystrophy Canada and the Canadian Neuromuscular Disease Registry are working together with NMD4C  to introduce a patient registry and collect information to build a Canada-wide core dataset for Facioscapulohumeral muscular dystrophy.

Learn more about this project at: https://muscle.ca/2023/02/27/mdc-cndr-nmd4c-partner-to-ensure-canadians-can-access-fshd-cures/.

Muscular Dystrophy Canada, Canadian Neuromuscular Disease Registry, NMD4C partner to ensure Canadians can access Facioscapulohumeral muscular dystrophy (FSHD) cure(s)

Read next...

2027 Basic Science Research Summer School - EN

Save the Date: 2027 NMD4C-RARE.Qc Basic Science Research Summer School

NMD4C and RARE.Qc are pleased to announce the 2027 NMD4C–RARE.Qc Basic Science Research Summer School, will take place May 12-14, 2027, at the Université du Québec à Trois-Rivières (UQTR). The Summer School will bring together graduate students, postdoctoral fellows, and early-career researchers for hands-on training workshops, scientific lectures, trainee presentations, networking opportunities, and engagement with leading experts in neuromuscular and rare disease research.

2026 Collaborative Researchs Training Awards Recipients

Congratulations to our 2026 Collaborative Research Training Award Recipients!!!

We are excited to announce the recipients of the 2026 NMD4C Collaborative Research Training Awards, which supports Canadian trainees in their efforts to advance neuromuscular disease research while strengthening national collaboration among neuromuscular research laboratories.

2027 Neuromuscular Clinical Fellows

Announcing the 2027 Neuromuscular Clinical Fellowship Funding Recipients!

Together with Muscular Dystrophy Canada, we’re excited to share our 2027 Neuromuscular Clininacal Fellowship Funding Recipients; Dr. Larissa Maini (University of Calgary), Dr. Anna Branch (University of Ottawa) and Dr. Olumide Emmanuel Adegunna (University of Toronto)! This year’s competition provided one-year salary support ($80,000) for our early-career clinicians to participate in Canadian neuromuscular medicine and electromyography (EMG) fellowship training programs.