Newborn Screening for Spinal Muscular Atrophy Introduced in Alberta and Saskatchewan
We are excited to share that through the advocacy efforts of Muscular Dystrophy Canada (MDC), in the past week both Saskatchewan and Alberta’s provincial governments have implemented newborn screening (NBS) programs for Spinal Muscular Atrophy (SMA)!
On February 23rd, Saskatchewan officially expanded their newborn screening panel to include testing for SMA as part of its newborn screening program, and on February 28th Alberta announced that through a pilot project with MDC, newborns will be able to be screened for SMA.
MDC continues to work diligently with donors, provincial governments, partners and supporters to remove barriers so that screening for SMA in Canada is a reality. Read more about MDC’s multi-year, multi-phase endeavour in collaboration with Novartis Pharmaceuticals Canada Inc. to better understand and address barriers for the implementation of newborn screening for spinal muscular atrophy (SMA).
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Applications Open for New NMD4C Collaborative Research Training Awards!
The NMD4C is excited to announce a new program for neuromuscular research trainees that will support collaboration opportunities between Canadian research labs.
NMD4C Members Receive Dr David Green Awards from Muscular Dystrophy Canada
We are excited to share that several NMD4C investigators and members have been honored with a Dr David Green Award from Muscular Dystrophy Canada!
Lower Extremity Muscle Strengthening Program in Myotonic Dystrophy Type 1 from Groupe de recherche interdisciplinaire sur les maladies neuromusculaires
The Groupe de recherche interdisciplinaire sur les maladies neuromusculaires (GRIMN) recently created a video aimed at health professionals that provides an in-depth explanation of the Myotonic dystrophy (DM1) training parameters used in their studies.
Fifth Annual Clinical Fellowship Competition from NMD4C and MDC Opens May 1st
The NMD4C and MDC clinical neuromuscular fellowship competition is accepting applications for the 2026 competition until June 12, 2025.
