Newborn Screening for Spinal Muscular Atrophy Introduced in Alberta and Saskatchewan
We are excited to share that through the advocacy efforts of Muscular Dystrophy Canada (MDC), in the past week both Saskatchewan and Alberta’s provincial governments have implemented newborn screening (NBS) programs for Spinal Muscular Atrophy (SMA)!
On February 23rd, Saskatchewan officially expanded their newborn screening panel to include testing for SMA as part of its newborn screening program, and on February 28th Alberta announced that through a pilot project with MDC, newborns will be able to be screened for SMA.
MDC continues to work diligently with donors, provincial governments, partners and supporters to remove barriers so that screening for SMA in Canada is a reality. Read more about MDC’s multi-year, multi-phase endeavour in collaboration with Novartis Pharmaceuticals Canada Inc. to better understand and address barriers for the implementation of newborn screening for spinal muscular atrophy (SMA).
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2025 NMD4C Basic Research Summer School to be Held at York University
Save the Date! We are thrilled to announce that we will be hosting our second annual basic research summer school for neuromuscular research trainees over May 7-8, 2025 at York University in Toronto, ON.
Call for Applications: Join the NMD4C’s Basic Science Trainee Committee
We are excited to share an opportunity for Canadian neuromuscular trainees to help shape the NMD4C’s basic science trainee strategy by joining the NMD4C Basic Science Trainee Committee (BSTC)!
NMD4C Honored with Dr David Green Award for Excellence in Service Delivery at MDC Awards Gala
Dr Jodi Warman-Chardon accepted the 2024 Dr David Green Excellence in Service Delivery Award on behalf of the network at the MDC Awards Gala.
NMD4C Welcomed Investigators to Annual Meeting in Calgary
Thank you to our investigators who attended the Annual NMD4C Meeting on September 27th in Calgary! Our meeting program consisted of presentations from pillar and task leads which highlighted their groups’ achievements and progress made to date.
