The Neuromuscular Disease Network for Canada

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NMD4C steering committee member Dr. Jim Dowling appointed Chair of the executive committee of TREAT-NMD

The NMD4C would like to congratulate our Steering Committee member Dr. Jim Dowling on his appointment as Chair of the executive committee of TREAT-NMD!

 

Along with his duties as Chair, Dr. Dowling also serves as a member of the TREAT-NMD Advisory Committee for Therapeutics.

TREAT-NMD is a network for the neuromuscular field that provides an infrastructure to ensure that the most promising new therapies reach patients as quickly as possible. Since its launch in January 2007 the network’s focus has been on the development of tools that industry, clinicians and scientists need to bring novel therapeutic approaches through preclinical development and into the clinic, and on establishing best-practice care for neuromuscular patients worldwide.

TREAT-NMD would like to recognise the valuable work in the neuromuscular field that many organizations, institutions, companies, and individuals are undertaking with an invitation to become a member of the new TREAT-NMD Alliance.

Become a member of TREAT-NMD here!

Find TREAT-NMD on twitter @treat_nmd

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Expert Patient Capacity Building Update

The NMD4C is involved in several activities under the provision of our Training and Education initiatives, including the establishment of expert patient capacity building (EPCB) resources for Canadian NMD patients. The EPCB team’s work involves the promotion of patient engagement in all aspects of NMD, and the development of easy-to-use and accessible Canadian NMD training modules and resources for both patients and researchers to support patient-oriented neuromuscular research in Canada.

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Response to the Federal Government on Building a National Strategy for High-Cost Drugs for Rare Diseases

The Neuromuscular Disease Network for Canada (NMD4C) in partnership with Muscular Dystrophy Canada (MDC)  and The Foundation for Gene & Cell Therapy (Jesse’s Journey) are pleased to provide the following summary of our recommendations for consideration into the National Strategy for Rare Diseases.

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MDC Press Release | Muscular Dystrophy Canada Awarded Imagine Canada Accreditation

This prestigious accreditation is an official complement to the extraordinary scope of work MDC does to support the neuromuscular community, influence positive change with advocacy and fund basic and translational research in the field of NMD.

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Launch of ENMC Mid-Career Mentoring Programme

Building from the success of the ENMC Early-Career Programme, the ENMC is proud to launch a new and ambitious Mid-Career Mentoring Programme.

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Rare Disease Day 2021 Recap

Observed annually on the last day of February, Rare Disease Day seeks to raise awareness among the general public, as well as policymakers, public authorities, industry representatives, scientists, and health professionals.   Due to the COVID-19 pandemic, activities this year were mainly virtual. But that did not stop patients, caregivers, researchers, clinicians, advocates and patient…