The Neuromuscular Disease Network for Canada

This past March, the Quebec SMA Network (Réseau québécois de l’amyotrophie spinale – RQAS) in collaboration with the NMD4C and Muscular Dystrophy Canada (MDC) hosted an interactive training session for French-speaking physiotherapists (PT) and occupational therapists (OT) on assessment measures and practices for Spinal muscular atrophy (SMA). This training gathered PTs and OTs to train and discuss SMA standardized outcome measures and work through current problems/challenges, to improve how these measures often tied to drug reimbursement are conducted. 

Thank you to everyone who attended! Special thanks to Dr. Xavier Rodrigue, Sarah Turgeon Desilets, Mélanie Claveau, Monique Emond, Catherine Desautels, Isabelle Demers, Amy Loignon, and Catherine Boivin. The event report is being developed, and additional virtual and in-person English training session will be organized before the end of the year. This event would not have been possible without restricted support from Roche and Biogen.  

Please contact us at <; > if you have any questions about SMA outcome measures or if you are a healthcare professional interested in events like this.