The Neuromuscular Disease Network for Canada (NMD4C)

The Neuromuscular Disease Network for Canada (NMD4C) is the new pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.

Knowledge Translation

The network’s KT group works to raise the standard of care and improve access to NMD therapies through the development, dissemination, and implementation of KT products (including clinical care guidelines).

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Patient Registries

Patient Registries Working Group Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and networking tool for rare diseases. The data collected may be used for a range of purposes, from research into specific features of the disease to clinical trial feasibility planning and recruitment.…

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Expert Patient Capacity Building

The EPCB group in collaboration with MDC and a group of patient-partners are working to establish expert patient capacity building in the Canadian neuromuscular community

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Clinical Trial Coordination

The NMD4C works to unite stakeholders in the Canadian neuromuscular clinical trial landscape including clinicians and trial sites, partner organizations, industry and people affected by NMDs.

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Early-Career

The NMD4C provide opportunities for EC members to encourage engagement in shaping the future of research and treatment surrounding NMDs.

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Clinical Curriculum Development

The clinical curriculum development group works towards standardising a curriculum for the training of clinical fellows in neuromuscular medicine in Canada.

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Biobanking

The NMD4C biobanking group seeks to unite the Canadian neuromuscular biobanking community, and provides information on current biobanks.

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Dr. Natasha Chang’s Blog

August 1, 2020 marked my lab’s first birthday. The last 366 days have been quite a roller coaster ride (it was even a leap year!). Having to build a lab from scratch is no easy task. I was literally given a room with…

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Dr. Kristina Joyal’s Blog

What motivates us to do what we do? As I reflect on these last few weeks, walking alongside a young family whose long-awaited firstborn was diagnosed with SMA by newborn screening as they struggle with the diagnosis and stress of lumbar punctures every 2 weeks in addition to the challenges of being new parents…

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Dr. Nicolas Chrestian’s’ Blog

I was born and raised in France. I finished my MD there and then I turned my eyes to Canada after meeting my lovely wife where I completed my training in neurology at Laval University. I did an elective in child neurology and decided to complete my training at McGill University. 3 mentors oriented my choices and career…

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