The Neuromuscular Disease Network for Canada (NMD4C)

The Neuromuscular Disease Network for Canada (NMD4C) is the pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.

Knowledge Translation

The network’s KT group works to raise the standard of care and improve access to NMD therapies through the development, dissemination, and implementation of KT products (including clinical care guidelines).

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Patient Registries

Patient Registries Working Group Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and networking tool for rare diseases. The data collected may be used for a range of purposes, from research into specific features of the disease to clinical trial feasibility planning and recruitment.…

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Expert Patient Capacity Building

The EPCB group in collaboration with MDC and a group of patient-partners are working to establish expert patient capacity building in the Canadian neuromuscular community

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Clinical Trial Coordination

The NMD4C works to unite stakeholders in the Canadian neuromuscular clinical trial landscape including clinicians and trial sites, partner organizations, industry and people affected by NMDs.

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Early-Career

The NMD4C provide opportunities for EC members to encourage engagement in shaping the future of research and treatment surrounding NMDs.

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Clinical Curriculum Development

The clinical curriculum development group works towards standardising a curriculum for the training of clinical fellows in neuromuscular medicine in Canada.

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Biobanking

The NMD4C biobanking group seeks to unite the Canadian neuromuscular biobanking community, and provides information on current biobanks.

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Dr. Mo Zhao’s Blog

I became interested in muscle biology during undergrad, and I am still amazed and excited by how one simple function like muscle contraction can involve such genetic and cellular complexity. After graduation, I knew I wanted to work in research, but wasn’t ready to go as far as doing a PhD…

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Dr. Nicolas Dumont’s Blog

Nicolas Dumont Profile Pic

I started my lab in April 2016, even though it feels like yesterday. When I look back at these last four years, I realize the tremendous amount of work that needs to be done to set up a lab…

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Dr. Melissa Bowerman’s Blog

When the first COVID-19  lockdown happened (March 17th for us in the UK), it was so sudden and drastic that the next few months were simply a whirlwind…

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