Myogenesis Discussion Group Seminar | Decoding Muscle Loss: Cardiac Cachexia, tRNA Dysregulation, and Muscle Atrophy Pathways
Knowledge Exchange Session of the NMD4C Community of Practice for physiotherapists and occupational therapists
Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
CPD-Accredited Webinar | Neuromuscular Mystery Case Rounds: A Distal Dilemma: Case Study of a Young Woman with Weakness in Hands and Feet
CPD-Accredited Webinar | Neuromuscular Mystery Case Rounds
Recordati Rare Disease Foundation course “Metabolic myopathies – challenges and solutions”
Recordati Rare Disease Foundation (RRDF) course “Metabolic myopathies – challenges and solutions” will be held in Split, Croatia on May 16-18, 2024.
RRDF courses have already for many years been an excellent opportunity for all those who need specific education in the field of inborn errors of metabolism. The topic of metabolic myopathies is very interesting and extremely important for metabolic physicians, pediatric neurologists, neurologists and other health care professionals who work in this field. The course is run by an experienced team of neurologists, pediatricians, geneticists, physiatrist, and biochemist specialized in neuromuscular diseases and metabolic medicine, who already contributed substantially to the understanding of metabolic myopathies. This three-day interactive course will include lectures, seminars, case reports, debates, and patient stories and is targeted both to healthcare professionals who are new in the field and to those who would like to refresh their knowledge with a variety of new information on metabolic myopathies.
Full Program
The programme of the course is available at https://www.rrd-foundation.org/en/civicrm-event/37.
Venue
The course will take place in the historical city of Split, Croatia on beautiful Adriatic coast.
Registration Fee
Course fee is 350 € and it includes 2 nights in hotel AC Marriott, Split, lunches, dinners and coffee breaks during the course, speakers’ presentations to take away after the course. Participants are responsible for their own travel arrangements to and from the course.
Useful links:
- Recordati Rare Diseases (RRD) Foundation web and course program: https://www.rrd-foundation.org/en
- Split, Croatia: https://visitsplit.com/en/1/welcome-to-split
- Hotel Marriott, Split: https://www.marriott.com/en-us/hotels/spuac-ac-hotel-split/overview/
Scientific Organizing Committee:
Ivo Barić, MD, PhD Department of Pediatrics, University Hospital Center Zagreb & School of Medicine
University of Zagreb, Zagreb, Croatia
Hanns Lochmüller MD, FAAN, Professor of Neurology | Canada Research Chair in Neuromuscular Genomics and Health, CHEO Research Institute | The Ottawa Hospital | Brain and Mind Research Institute | University of Ottawa
Danijela Petković Ramadža, MD, PhD, Department of Pediatrics, University Hospital Center Zagreb
& School of Medicine, University of Zagreb, Zagreb, Croatia