The Canadian Rare Disease Network (CRDN) invites you to a dynamic townhall event to engage with thought leaders, experts, and the rare disease community. This is your chance to be part of shaping the future of rare disease care and research in Canada!

What to Expect

• Learn about CRDN’s mission, vision, and the draft strategic plan, including goals for each of our Pillars that will guide our collective efforts.
• Ask questions, share your insights, and contribute to the co-development of CRDN’s strategic plan.
• Connect with patients, caregivers, researchers, healthcare providers, advocates, and other key members of the rare disease community.

Why Attend?

Your voice is vital in building a more integrated, inclusive, and compassionate approach to rare disease care and research in Canada. This townhall is an opportunity to influence how the CDRN community will move forward together, ensuring that every rare disease patient and their families are empowered to live their full potential.

Who Should Attend?

• People with lived/living experience of rare diseases (inclusive of people directly affected by a rare disease and their families/caregivers)
• Researchers and Healthcare Providers (inclusive of clinicians, nurses, psychologists, community care providers)
• Advocates and Community Members interested in rare diseases

Register Now!

Don’t miss this opportunity to be part of the conversation. Click here to register and join the CRDN on October 31 for a meaningful discussion.