NMD4C Knowledge Translation (KT) Webinar Series
Did you know? In September, the network’s Knowledge Translation team launched a webinar series to provide a variety of information, tools and general guidelines to facilitate evidence-based practice.
If you missed the first KT webinar on September 29, it’s not too late! If you wish to watch (or re-watch) Dr. Lamontagne’s presentation ‘’Setting up the basics for a successful KT plan’’, you can learn about the knowledge-to-action framework, including the differences between the end of grant and integrated KT plans, specific challenges with KT in the context of neuromuscular disease, and how to develop a KT plan for a CIHR- grant. You can still access a recording here.
Share your knowledge translation experience with us!
Did you recently apply KT skills in your clinical practice? Are you aware of any KT projects around you that you believe could benefit other colleagues? If you have an example of a successful (or constructive!) KT story, the NMD4C KT team would love to hear from you. We hope that sharing these experiences within the network can inspire other members of the neuromuscular community to explore the different KT options they have available to them, and to implement these strategies in their work.
If you would like to share a KT project with the network, please contact network communications coordinator James Davis at .
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NMD4C Hosts 3rd Annual Basic Research Summer School at uOttawa!
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New Publication from the NMD4C Clinical Trial Network Strengthens Trial Capacity in Canada
We are pleased to share a new publication from the NMD4C Clinical Trial Network led by Kerri Lynn Schellenberg, Homira Osman, Maria Masnata, Rhiannon Hicks, Corinne Kagan, Ana Stosic, Stacey Lintern, Erin Beattie, Drs. Hanns Lochmüller, Craig Campbell, and Jean K Mah. This work focuses on the implementation of a coordinated Canadian neuromuscular clinical trial network to enhance trial readiness, capacity, and access in rare disease research.
Canadian-Led Phase II Studies Advance Vamorolone Evidence in Duchenne Muscular Dystrophy
NMD4C investigators contributed to two phase II studies evaluating vamorolone in boys with Duchenne muscular dystrophy across early childhood and adolescence, demonstrating safety, favorable pharmacokinetics, and potential efficacy. Led by Dr. Jean Mah and conducted across Canadian clinical trial sites with national and industry collaborators, the findings supported Health Canada approval of vamorolone as the first treatment for DMD in Canada. Leaders from both the clinical and patient advocacy communities, including Defeat Duchenne Canada, highlighted the impact of collaboration among patients, families, clinicians, and researchers in advancing care and improving access to new therapies.