New Course ‘Skills for Patient Oriented Research’ Added to ImPORTND Training Platform
The third and final module of our patient-oriented research training platform, ImPORTND, is now available! ‘Skills for Patient-Oriented Research’ teaches specific skills to help with patient-oriented research (POR), including how to develop an effective patient engagement plan, share and listen to patient stories, and evaluate project engagement.
Register for 'Skills for Patient-Oriented Research' here!
ImPORTND Platform
The ImPORTND platform offers online, self-directed, free neuromuscular-specific training on how to conduct research that is informed by, and most meaningful to individuals living with neuromuscular diseases and are designed for all members of the study team: including researchers, lab staff, and patient- and family partners. ImPORTND consists of three modules: Readiness for Patient-Oriented Reseach, Inclusion/Diversity/Equity/Accessibility (IDEA), and Skills for Patient-Oriented Research. All are available in English (imPORTND) and French (inFORMERMN). Learn more about the development of these training modules on the NMD4C website.
Free Training and Support Services
Taking the first steps towards establishing a patient-oriented research strategy can be the most challenging, which is why we are partnering with Muscular Dystrophy Canada (MDC) to offer free training and support services for both research teams and patients to empower all members of the research team to conduct research that is informed by, and most meaningful to individuals living with neuromuscular diseases.
We are working with MDC to connect research teams with trained patient partners whose experiences and research interests align with the proposed area of research, and support to compensate patient-partners for their involvement.
Take the Training
Begin the training here!
If you have any questions about the training, please contact network manager Erin Beattie at .
Read next...
Applications Open for New NMD4C Collaborative Research Training Awards!
The NMD4C is excited to announce a new program for neuromuscular research trainees that will support collaboration opportunities between Canadian research labs.
NMD4C Members Receive Dr David Green Awards from Muscular Dystrophy Canada
We are excited to share that several NMD4C investigators and members have been honored with a Dr David Green Award from Muscular Dystrophy Canada!
Lower Extremity Muscle Strengthening Program in Myotonic Dystrophy Type 1 from Groupe de recherche interdisciplinaire sur les maladies neuromusculaires
The Groupe de recherche interdisciplinaire sur les maladies neuromusculaires (GRIMN) recently created a video aimed at health professionals that provides an in-depth explanation of the Myotonic dystrophy (DM1) training parameters used in their studies.
Fifth Annual Clinical Fellowship Competition from NMD4C and MDC Opens May 1st
The NMD4C and MDC clinical neuromuscular fellowship competition is accepting applications for the 2026 competition until June 12, 2025.
