NMD4C Launch Survey to Assess Familiarity and Experience in Outcome Measures in NMDs
When treatments and therapies undergo approval processes in Canada or are proposed for reimbursement, they frequently rely on outcome measures that were used in the clinical trials. In the case of Spinal Muscular Atrophy (SMA), the reimbursement criteria mirrored motor function measures utilized in clinical trials and were not routinely used in clinical practice. To address this, the NMD4C has coordinated interactive training workshops for clinical evaluators (physiotherapists and occupational therapists) focused on SMA outcome measures.
As we anticipate novel treatments for other neuromuscular conditions, we would like to understand your familiarity and experience with the outcome measures in clinical trials underway or for treatments for NMDs approved in other jurisdictions through a short survey. We would like to hear from neurologists, physiatrists, physiotherapists, occupational therapists, and neuromuscular nurses who conduct outcome measures as part of clinical trials and/or clinical practice. This information will help us in identifying and addressing any training needs or gaps through the development of workshops and resources.
Complete the short survey here: https://redcap.link/NMD4Coutcomemeasuresurvey
Read next...
2025 NMD4C Basic Research Summer School to be Held at York University
Save the Date! We are thrilled to announce that we will be hosting our second annual basic research summer school for neuromuscular research trainees over May 7-8, 2025 at York University in Toronto, ON.
Call for Applications: Join the NMD4C’s Basic Science Trainee Committee
We are excited to share an opportunity for Canadian neuromuscular trainees to help shape the NMD4C’s basic science trainee strategy by joining the NMD4C Basic Science Trainee Committee (BSTC)!
NMD4C Honored with Dr David Green Award for Excellence in Service Delivery at MDC Awards Gala
Dr Jodi Warman-Chardon accepted the 2024 Dr David Green Excellence in Service Delivery Award on behalf of the network at the MDC Awards Gala.
NMD4C Welcomed Investigators to Annual Meeting in Calgary
Thank you to our investigators who attended the Annual NMD4C Meeting on September 27th in Calgary! Our meeting program consisted of presentations from pillar and task leads which highlighted their groups’ achievements and progress made to date.
