CNDR Officially Launches Canadian FSHD Dataset to Support Research and Therapy Readiness
The Canadian Neuromuscular Disease Registry (CNDR) is excited to announce the official launch of its new Facioscapulohumeral Muscular Dystrophy (FSHD) dataset this fall.
“This addition enhances our ability to directly support our CNDR sites in collecting high-quality, real-world data that drives FSHD research, expands knowledge, and supports future therapy readiness for individuals living with FSHD across Canada. We look forward to working closely with clinicians, researchers, and the FSHD community to deepen our understanding of the disease and strengthen coordination between research and clinical care nationwide.”
– Dr. Lisa Marie Langevin, Clinical Program Manager, Canadian Neuromuscular Disease Registry (CNDR)
Following previous updates on CNDR’s FSHD initiatives, NMD4C looks forward to seeing the continued impact of the new dataset on research and care for individuals living with FSHD.
Read next...
Sixth Annual NMD4C and MDC Clinical Fellowship Competition from Opens May 1st
Together, NMD4C and MDC are excited to open our 2027 annual funding competition to provide clinical fellowship award(s) in neuromuscular medicine and electromyography (EMG)! This annual funding competition provides one-year salary support ($80,000) for early-career clinicians to participate in Canadian neuromuscular medicine and EMG fellowship training programs.
Advancing Neuromuscular Research: MDC Awards $700k to Seven NMD4C Investigator-Led Projects
We’re proud to share that neuromuscular research led by our NMD4C Investigators and Leads; Dr. Hanns Lochmüller, Dr. Rashmi Kothary, Dr. Rami Massie, Dr. Elise Duchesne, Dr. Omid Kiamanesh, and Dr. Nicolas Dumont, have been recognized in Muscular Dystrophy Canada’s 2026 Neuromuscular Clinical and Translational Research Grant announcement. Drawing from MDC’s national funding update, we’re…
Announcing the 2026 NMD4C Award Recipients
We are excited to announce the recipients of the 2026 NMD4C Awards, recognizing excellence, leadership, and impact across Canada’s neuromuscular research community. In this fourth cycle, the program introduces two new award categories, and expand on our ability to celebrate the work of contributions of trainees and patient partners who strengthen our national network.